Pulmonary Fibrosis News Forums | Pamela Green | Activity https://pulmonaryfibrosisnews.com/forums/members/pamelagreen/activity/ Activity feed for Pamela Green. Wed, 22 Apr 2026 16:32:15 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 ec62514c25da6fb43b81e5964a2bc4f6 Pamela Green posted an update: I was put on the transplant list at Temple in PA on […] https://pulmonaryfibrosisnews.com/forums/activity/p/18197/ Thu, 20 Feb 2020 16:36:31 -0600 I was put on the transplant list at Temple in PA on January 24th. I now hear from my son in England that everyone applying for a new driving application is automatically on the donar list unless you opt out.
Would that not be great if introduced in the USA as well

]]> 1 6dbfffc99db54ac39197690e3f96bc40 Pamela Green replied to the discussion Am I Too Old for A Lung Transplant? in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/am-i-too-old-for-a-lung-transplant/#post-22265 Tue, 17 Dec 2019 19:33:15 -0600 Reply to Am I Too Old for A Lung Transplant?

Mark, Just wanted you to know that Temple University Hospital called me this morning and are putting me on the transplant list next week.

]]> 10805d1e975e06e709676c8173cc205c Pamela Green posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/12577/#acomment-16384 Mon, 25 Nov 2019 18:54:53 -0600 Cynthia, Dd you get onto the transplant list at Mass General?
I am pleased I moved to Temple who appear to have an excellent program and my ex-daughter in law has kindly offered me her home for us to stay an hour away from the hospital for as long as we need. I feel truly blessed.

In reply to - Cynthia and paula are now connected ]]> d1bcf3547ff6397380106f26f9e2ce87 Pamela Green posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/12791/#acomment-16383 Mon, 25 Nov 2019 18:47:12 -0600 I am finding this the most interesting topic so far as I am only 1 week away from my final evaluation at Temple University for transplant.
These O2 numbers are so difficult to control. All I can do is sit or lie down and wait as soon as I move from 92/93 resting I can drop to low 80’s high 70′ which is scary. When showering my partner has… Read more

In reply to - Pamela Green became a registered member ]]> 7edfe3a22a342b40916d068a60f34e67 Pamela Green replied to the discussion What You Enjoy... in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/what-you-enjoy/#post-21752 Fri, 25 Oct 2019 15:09:46 -0500 Reply to What You Enjoy...

Great subject Katie, ( @katiebagshawe )

Are you in Derbyshire? I am a Yorkshire lass living in the USA and as I am limited as to what I can do, my main pleasure is Netfix or Prime and watching the BBC detective programs like DCI Banks, George Gently etc.

It so nice to see the countryside, places I recognize and my accent which is… Read more

]]> 65381ca5aef6ab78b206842578d2445c Pamela Green replied to the discussion Comparing Lung Transplant Centers in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/comparing-lung-transplant-centers/#post-21645 Wed, 16 Oct 2019 13:40:14 -0500 Reply to Comparing Lung Transplant Centers

Daryl, So good to hear from you and glad to hear that you are doing so well.

My dilemma right now is that although they will evaluate me at Temple. They do not take my Supplemental United health

care, so now I am stumped as to what to do. I have had it for 6 years and have never not had it accepted.

It’s like pulling teeth trying to get hold… Read more

]]> 1f7dd145fb688f47262554a5e8f8ae52 Pamela Green replied to the discussion Comparing Lung Transplant Centers in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/comparing-lung-transplant-centers/#post-21617 Thu, 10 Oct 2019 19:57:57 -0500 Reply to Comparing Lung Transplant Centers

( @cynthia-comery-ferguson )

Hello Cynthia, Mass General said age was the reason which is why I am so disappointed. 2 years ago I was told I was a good candidate as there is nothing else wrong with me, no meds, not overweight, not diabetic.Never smoke, don’t drink.

They work together with Brigham and Women’s and checked with them but… Read more

]]> 90a9acb44c792379a053fd70a39daa83 Pamela Green replied to the discussion Comparing Lung Transplant Centers in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/comparing-lung-transplant-centers/#post-21616 Thu, 10 Oct 2019 17:31:24 -0500 Reply to Comparing Lung Transplant Centers

Hello Les V

Thank you so much for all that valuable information. It’s a lot to digest so give me a few days and I will contact you by e-mail.

I have just had all my records from Mass General anomy primary care doctor mailed to Temple and by Monday hope to have date for evaluation.

I was not aware one could apply at more than one centre (… Read more

]]> 43585fff6ec4e5c82ed60bf8e24a2ca0 Pamela Green replied to the discussion Comparing Lung Transplant Centers in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/comparing-lung-transplant-centers/#post-21554 Sat, 05 Oct 2019 18:33:21 -0500 Reply to Comparing Lung Transplant Centers

Having just been turned down by Mass General at only  72 and led to believe I was a good candidate.

Where to go from here.

I have been in touch with Mark Koziol who gave me some advice and my Primary care doctor who is excellent is trying to help and told me that it often comes down to your local support system. Others have mentioned… Read more

]]> 7f6d6fe2e8e151fad0e076629f4d5b8a Pamela Green replied to the discussion How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-feel/#post-20734 Wed, 07 Aug 2019 16:56:35 -0500 Reply to How do you feel?

Hello Mark, Yes I am on oxygen. 2 liters at night and around 3-4 doing tasks, making the bed etc, which can take up to 40 minutes, stopping to rest as I go.

I will take your advice and get out of the house as much as possible. I will contact my senior center and see if they have a bus service that goes to the senior center and the… Read more

]]> 5fbf0fd2de571d70224b563946e66c28 Pamela Green replied to the discussion How do you feel? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/how-do-you-feel/#post-20726 Wed, 07 Aug 2019 14:19:59 -0500 Reply to How do you feel?

I can certainly understand the shrunken world as this week my car is being detailed and then sold so then I will have to rely on others to go anywhere. Even short trips to the library to sit and do a jigsaw will have to go.

Time to start on my list of classics I promised myself to read!

I was diagnosed almost 2 years ago but looking back… Read more

]]> 99f4cff5015cdc89321b27636cf1dd71 Pamela Green replied to the discussion Starting Esbriet in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-esbriet/#post-19915 Tue, 18 Jun 2019 19:48:17 -0500 Reply to Starting Esbriet

Bill ( @bill-hunt) I am most likely starting Esbriet next week. Reluctantly as my reaction to Ofev was not pleasant and I was taken off after 3 months due to increased liver enzymes.

May I ask you were you found all your information regarding Esbriet.

I was not good on Ofev. If I did not have the “runs” I was vomiting, or nosebleeds. If I… Read more

]]> c7b8a127df6abbb46d7345ac5e51c90e Pamela Green posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/12577/#acomment-13016 Thu, 13 Jun 2019 14:45:09 -0500 Cynthia, I did reply to your questions re oxygen suppliers in Rhode Island but for some reason I have not seen my reply.
I live in North Kingstown and use Apria who are on the East Side I believe.
They have been excellent both with the home concentrator and the Inogen portable unit. They cover the country which is important to me as we leave… Read more

In reply to - Cynthia and paula are now connected ]]> 1afd5c8dd0d74994ff7aa7fa8707ab0a Pamela Green posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/12791/#acomment-12982 Tue, 11 Jun 2019 15:12:48 -0500 Hello Mark, I have just replied to Cynthia but it has not been posted and am wondering what I did wrong. Does it take time to show up?
Pamela

In reply to - Pamela Green became a registered member ]]> c20a8a001c7fa782e7442a9ffc60fe64 Pamela Green posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/12791/#acomment-12834 Wed, 05 Jun 2019 17:31:13 -0500 Thank you Mark, from what I have already seen on these forums, many of you are better informed than many primary care doctors.
I look forward to joining in when appropriate and woodier if Cynthia would be kind enough to contact me.
I too live in Rhode Island and Auto Immune disease has just been ruled out in my case. Maybe we can meet up sometime.I am 72

In reply to - Pamela Green became a registered member ]]> 4bbc0f2b54056c175af059e7f11ba86b Pamela Green became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/12791/ Tue, 04 Jun 2019 22:45:22 -0500 5