Pulmonary Fibrosis News Forums | Pam Maguire | Activity https://pulmonaryfibrosisnews.com/forums/members/pammaguire/activity/ Activity feed for Pam Maguire. Tue, 14 Apr 2026 20:19:10 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 d6be4ab3bd0bd2b2563e8a7bdb4c46e7 Pam Maguire and Gavin John Powers are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/39143/ Fri, 16 Jun 2023 23:40:32 -0500 0 b068432220413ead8a1a5c1d4edc896b Pam Maguire replied to the discussion Doctors making little sense despite severe symptoms in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/doctors-making-little-sense-despite-severe-symptoms/#post-34969 Tue, 02 May 2023 11:37:56 -0500 Reply to Doctors making little sense despite severe symptoms

Hi Gavin,

I am also in UK, my husband has IPF.

I’m so sorry your not being looked after in your area, I know the feeling of shouting and no-one listening.

Can I clarify, your lumg function  FVC was 20% or you have lost 20% ?? My husbands FVC is 66% and was sent for a full oxygen assessment- was determined he didn’t need it but ask for… Read more

]]> 54a38fcbdfa69195a9387ed6be04ff22 Pam Maguire posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/38004/#acomment-38294 Wed, 12 Apr 2023 13:13:42 -0500 Hi Kim, hope you are well. Did you get your lung function test results? Any improvement? 3 hospitals are still trying to sort stuff for my husband and have managed to forget to do some blood test. So more waiting xx

In reply to - Pam Maguire and Kim Morrison are now connected ]]> a795a09715c184a60acd38bb7a2d498b Pam Maguire posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/38192/#acomment-38214 Thu, 06 Apr 2023 11:46:39 -0500 Hi Jeff, we are UK also. My husband newly diagnosed at 53! We are under the care if Wythenshawe ILD unit.
How are you doing?

In reply to - Pam Maguire and Jeff are now connected ]]> c2755246dbd6b0c751565d8adaba9f91 Pam Maguire and Jeff are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/38192/ Wed, 05 Apr 2023 11:46:05 -0500 1 27f1d88d694e7e96f3bd43ae3ebcb082 Pam Maguire replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-34754 Mon, 27 Mar 2023 15:01:20 -0500 Reply to Life span

I also believe herbal remedies may help. I am keeping a keen eye on trails taking part in Australia at the moment safety testing on a new product designed to block Interlukin-11 and in mice it stopped and reversed scarring. This is my hope for my husband and PF community

]]> 60b13d2c923bfb64783266a26a133192 Pam Maguire and Charlene are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/38041/ Sun, 26 Mar 2023 14:01:09 -0500 0 39c75e4d3f168aeffedaea82a5566684 Pam Maguire and Kim Morrison are now connected https://pulmonaryfibrosisnews.com/forums/activity/p/38004/ Fri, 24 Mar 2023 15:11:23 -0500 1 5eba927ae1b798a283c859b7321142ce Pam Maguire replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-34714 Fri, 24 Mar 2023 07:54:56 -0500 Reply to Life span

Hi Kim, I’m interested what your doctor said about the reduction in shadowing? Thought current medications available only slowed scarring not reduced? Or is it a different thing?

Pam

Xx

]]> c820731b9c984cb71962319edbf49f5f Pam Maguire became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/37971/ Thu, 23 Mar 2023 17:37:50 -0500 0