Hi Chuck, Medicare, in 2026, has an out-of-pocket cost capped at $2100.00. That’s only a few days of Jascayd. The key is it must be a covered drug. I have Aetna Medicare Supplement and they list it as an approved drug and I have a 10% co-pay. Since Aetna approved the drug, it will allow me to take advantage of the $2100.00 out of pocket. …

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Like your screen name…. Have you tried https://www.healthwellfoundation.org/ ? They provide some grant money for Jascayd. Not full coverage but helps. And Jascayd/BI Careconnect4me program provides additional resource listings.

Started Jascayd 4 weeks ago. 18mg 2X day. My Dr had me stop OFEV and start Jascayd. The GI issues have been somewhat better but not completely gone. I do have IPF and had been taking OFEV for 6 years. Going for my PFT’s and walking tests in 3 months and will see if any changes.

Motorcycle was my sanity/escape and had to sell since I become tired more easily. Started to learn photography and plan to take grandkids fishing when the weather cooperates. Also, just joined a local chess club that encourages beginners (like me).

Hi Luann,

Regarding mycophenolate tolerance, I’m on 1500 mg twice a day. I do experience occasional stomach issues, and I’m confident that everyone taking it has a slightly different experience. (With my doctor’s monitoring, I stopped it for six months and had scans. Normally, my progression has been slow, but after stopping it, the fibrosis…

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Hi George, is your pulmonologist involved in the medicine discussion? Challenge is we all have different reactions and we can provide anecdotal information, but I’d be cautious with medical information. So, I have been on Mycophenolate for 9 years. During that time I’ve also tried rituximab infusions and prednisone but 5 years ago went to…

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