Pulmonary Fibrosis News Forums | Paula Gee | Activity https://pulmonaryfibrosisnews.com/forums/members/paula/activity/ Activity feed for Paula Gee. Wed, 22 Apr 2026 02:03:37 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4913f12d0fd130587214bc85741f3599 Paula Gee replied to the discussion New to IPF in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/new-to-ipf-2/#post-36443 Tue, 09 Jan 2024 20:22:18 -0600 Reply to New to IPF

Pops were you able to get the oxygen you needed? That was the most challenging part of my treatment because of Medicare requirements you be seen in person to get a prescription. I have tried Ofev and discontinued it because of harsh side affects. I have Hypersensitive Pnuemonitis diagnosed by biopsy but I have been treated for ILD since 2015.…

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]]> acefde82d31c4e9c23e7f3ac4b1887cd Paula Gee replied to the discussion Hard time Breathing in the mornings. in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/hard-time-breathing-in-the-mornings/#post-36384 Thu, 28 Dec 2023 20:16:30 -0600 Reply to Hard time Breathing in the mornings.

Hi there. My name is Paula. I have hypersensitive pnuemonitis which is caused by mold. I was diagnosed in 2015. Starting using oxygen in 2019. Has your Dr suggested or tested you for needing oxygen?

Tried Ofev. Too harsh for me. I use Cell Cept, azithromycin 3 x a week, and 10-20 mg of prednisone. Seasonal allergies affect my breathing but being…

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]]> 3ad0f522bc31ed29bbcb0340cc254785 Paula Gee replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/#post-35439 Thu, 20 Jul 2023 21:22:48 -0500 Reply to How quickly can pulmonary fibrosis progress?

Jayme,

Have you been offered Cell Cept or
Prednisone. I was diagnosed in 2015 with ILD and a biopsy in 2019 showed exposure to mold. So I started to need oxygen in 2019 but it is portable and comes in many forms. I was on Ofev for a short while but chose not to deal with side affects. I got enrolled in a drug trial
At my hospital University… Read more

]]> 49d716a4bcc1d83a27f20485f6b71460 Paula Gee replied to the discussion Deciphering spring allergies from worsening PF symptoms in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/deciphering-spring-allergies-from-worsening-pf-symptoms/#post-34830 Wed, 05 Apr 2023 16:40:46 -0500 Reply to Deciphering spring allergies from worsening PF symptoms

I have recently started one generic anahistamine morning and night and my seasonal allergies are better under control. I still have some sinus drainage but don’t feel the energy drain like before. I am on daily dose of 10 mg of prednisone. In the fall I have found that upping that to 20 mg during the allergy season really helped. I live in… Read more

]]> 92b15a33e6aa4f1aec65f8fc94634622 Paula Gee replied to the discussion Rolling cart in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/rolling-cart/#post-32868 Tue, 09 Aug 2022 20:41:18 -0500 Reply to Rolling cart

I use a walker with a seat on it and put my portable concentrator on the seat to move around in the house. I also use the walker to carry my laundry to the laundry room, trays to the kitchen etc. it really gives me a lot of confidence having it to help with the energy usage. I also try to use the wine bottle size oxygen bottles when I am out for… Read more

]]> 5a02c03f2fffb168d0c71164839cf869 Paula Gee posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/33020/#acomment-33137 Wed, 04 May 2022 15:43:18 -0500 Christie thanks so much. I find these forums are so helpful. Thanks for reaching out.

In reply to - Paula Gee became a registered member ]]> ccbf90441644574cd2484162d1c06498 Paula Gee replied to the discussion Buying an Oxygen concentrator in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/buying-an-oxygen-concentrator/#post-31877 Fri, 29 Apr 2022 14:30:36 -0500 Reply to Buying an Oxygen concentrator

I have not flown with a portable oxygen concentrator yet but I was making plans for a trip to Scotland. I have a Caire Freedom Style portable and use a setting of 2. When I talked to United Airlines they told me my machine was not on the approved FAA list even though I told her the machine has an FAA approved label on the bottom of the machine.… Read more

]]> eba8ba5dcf653e40080615b6f383d62c Paula Gee became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/33020/ Fri, 29 Apr 2022 13:23:13 -0500 2