Consult with the second pulmonologist. When my husband’s cough would not go away, he was referred to a pulmonologist who said that he had “just a little scarring of the lungs – nothing to be concerned about.”
at the next visit about six months later the same doctor said “how long have you had idiopathic pulmonary fibrosis”?  We had no idea… Read more

By the way, my husband was denied at Barnes Jewish Hospital because of the cardiac issues. St Josephs In Phoenix was happy to evaluate him, listed him and provided the transplant. Never assume that one denial means everyone will deny you. Not true.

Joseph’s Hospital in Phoenix is another high volume and thus high risk transplant center. Even though my husband had two stents in his heart, they requireD that a third stent be inserted. They took care of that and then listed him when he had an exacerbation. He had his double bypass within three days of being listed. I highly recommend them.… Read more

My husband was turned down at Barnes Jewish Hospital in St. Louis because of cardiac issues-he needed stents. He was turned down at UC San Diego because of his age, 68.  He was excepted at St. Joseph’s Hospital in Phoenix which has an excellent track record and there’s a high-volume lung transplant center. They inserted the needed stents  in… Read more

Thank you for your response. It is good to know that my husband is not the only person who has the severe lung pain. The doctor looked so surprised when he described it to him. We have not tried CBD oil yet;  not sure whether the lung transplant folks would have a problem with that as they do with pain medication and alcohol, neither of which… Read more

My husband has severe pain “in his lungs”.   He describes it as feeling like someone has plunged a knife into his lungs and he experiences this pain all the time but it is worse when he is taking a breath. He is not allowed any pain medication because he is  a pre-transplant patient, and I understand this restriction given the need for… Read more

It breaks my heart to learn of someone so selfless passing away for lack of an equally selfless donor.   I wonder if people who are not donors simply haven’t given it any thought, in which case an awareness campaign is long overdue, or if they are superstitious or simply do not care.  I am certain that Kim was aware of the good that she was… Read more

To help the problem of scabs in the nasal canal, I find a little dab of vitamin E oil works wonders. I actually use it every morning as a preventative measure. I noticed that when I forget after a couple of days the problem arises again.

When researching lung transplant centers I found the Scientific Registry of Transplant Recipients web site to be very helpful.  It provides data about historical transplant volume, success rates at varying time intervals, wait lists, etc.  the data available now is for 2017 and prior, so I like to think that current results may be even better.… Read more