Yes. I’ve totally lost my voice. I finally saw laryngologist #2 today who believes it may be a fungal infection as a result of steroids (Prednisone and an inhaler) and several back to back bouts of pneumonia and upper respiratory infections with endless coughing over the last six months. He gave me an antifungal and I have to come back in…

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I spend endless hours doing watercolor paintings. I generally use reference photos I’ve taken on various trips over the years or simply from walks in my neighborhood. It gives me the joy of both memories and being creative. I also do clay sculpting, which is lots of fun. And from time to time, I pull out my violin which I love, but can play…

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I’ve had an Inogen One G3 for about four years. You begin to get a ‘feel’ for how much time you have, although it depends on which setting you are using. If I click up or down on the setting button, it will usually show me how much time I have left (assuming exactly the same setting, of course.) Keep in mind, though, that the info you receive…

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Ever since I was diagnosed, I decided to celebrate the heck out of every milestone, including birthdays! May we reach many more positive milestones in our lives!

Hi Charlene!

What a great idea! I have NSIP, more fibrotic than cellular, and my motto is not to grieve over what I can’t do, but to celebrate what I can. NSIP has provided me with an opportunity to explore various creative avenues including sculpting and watercolor painting. I would love to post pictures, but I can only see a possibility to…

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Hello Charlene,

My name is Randi. I am 68 years old, and was diagnosed with NSIP about a year and a half ago, and I have been attending pulmonary rehab sessions twice a week since then.

• Without a doubt, it has been instrumental in reducing dyspnea, increasing exercise performance, and improving health-related quality of life (HRQL).

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