I have similar problems. I use Arm and Hammer Simple Saline mist several times a day. Nasal rinses in the morning or as needed. Mist and saline gel at night. The gel stays in my nostrils as I sleep. I also have used saline mist gel but not convinced how much it helps. At night I have a high-end AirOSwiss humidifier to keep the bedroom air… Read more

I am on high oxygen and experiencing irritation of my nasal tissues, including crusty accumulations of bloody tissueand soreness. Two treatments have helped. Simply Saline by Arm & Hammer injects a fine saline mist deeply into each nostril. It has no additives, which some reports say are damaging to the tissues. I use it several times a day.… Read more

Great. IPF has reduced my appetite and food consumption, and consequently caused significant weight loss and lower BMI. It is a vicious circle. Taking famotidine, the generic Pepsid AC, has helped with acid reflux and increased my appetite somewhat. I am taking 100 Mg OFEV twice a day along with 801 mg Esbriet three times daily.

This needs work. 1) Do not bury the lead. The introduction is way too long, includes too many names and details of the source of the information being presented before getting to the meat of the podcast. It is far more beneficial to summarize the results first. 2) Content is very technical with a lot of medical terminology, abbreviated… Read more

There are clinical trials for just about every disease. PFF has a clinical trial finder for pulmonary fibrosis here:
https://trials.pulmonaryfibrosis.org. You can find sources for other types of clinical trials through Google or other search engine.

I have been taking simvastatin for many years and do not believe it interacts with Esbriet, the medicine I am on for IPF. Statins reduce cholesterol which can clog blood vessels and put strain on the heart. IPF reduces lung function which also puts strain on the heart. For that reason, I think it would be a bad idea to stop taking your… Read more

This web site provides specs for Portable Oxygen Concentrators including both pulsed and continuous flow models. The continuous models have a limited range of flow, up to a maximum of 3 liters per minute.  https://www.portableoxygensolutions.com/portable-oxygen-concentrator-comparison-guide/ When I travel within the US, I make arrangements… Read more

I discovered a website that provides a comparison among the most popular models of Portable Oxygen Concentrators. https://www.portableoxygensolutions.com/portable-oxygen-concentrator-comparison-guide/  There are many tradeoffs of weight, cost and battery life. Your oxygen supplier will likely offer only some of them. Although most come with a… Read more

I need a POC for travel and it is complicated! My oxygen supplier, LinCare, says there is a backlog in getting them. We have a trip planned in mid October, and I may have to rent one for about $125 a week. There are several websites that rate the different makes and models. Inogen One G3 is highly rated in most reviews, but LinCare won’t carry… Read more

My pulmonologist recently switched my IPF medication from OFEV, which I took for a year and a half, to Esbriet. This was in response to a recent study that indicated taking a combination of the two was more effective at slowing the deterioration of the lungs than either alone. I am in my third month of Esbriet and have not yet been directed by… Read more