Pulmonary Fibrosis News Forums | Rune Harboe | Activity https://pulmonaryfibrosisnews.com/forums/members/runewh/activity/ Activity feed for Rune Harboe. Thu, 23 Apr 2026 13:45:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4336530041f7a13f1dbd1141429e6822 Rune Harboe posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/2433/#acomment-36579 Tue, 20 Dec 2022 21:17:03 -0600 Embarrashed that I have not followed up on this treatment. I did not notice any difference after going through with this treatment. My oxygen level is about the same sitting still, but getting out of breath faster than 5 years years ago. Consider myself lucky that I am still able to get out of bed in the morning and can take care of myself.

In reply to - Rune Harboe posted an update Just a quick update – I went through with the stem cell procedure last week. Spent 2 days at the lung institute in Dallas. The procedure was painless. Was told it will take about […] ]]> 6bcc80e691dd5b2ddbc6c23922c3c808 Rune Harboe replied to the discussion Starting out with Esbriet in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-out-with-esbriet/#post-33924 Tue, 20 Dec 2022 21:07:59 -0600 Reply to Starting out with Esbriet

I have been on Esbriet since being diagnosed with IPF 6 years ago. Taking 3 capsules 3 times a day – 267MG. Had side effects (stomach problems) at first, but then I read somewhere to take protein before taking the medication and that has helped. I am 80 years old and one side effect I have is dizziness when first getting out of a chair or… Read more

]]> a13a70f2609138506b32a610b15b1609 Rune Harboe joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/33455/ Thu, 19 May 2022 02:54:01 -0500 0 53d61d71c7d2ae4cdc56e584e6d1ebf9 Rune Harboe replied to the discussion Eating food with pill in the forum Healthy Recipe Sharing https://pulmonaryfibrosisnews.com/forums/forums/topic/eating-food-with-pill/#post-31131 Tue, 22 Feb 2022 21:36:29 -0600 Reply to Eating food with pill

I was diagnosed with IPF 6 years ago and have been taking Esbriet since. Before I take my 3 pills 3 times a day, I eat some protein, a slice of cheese, or slice of sandwich meat, and egg or ……. This seems to help me not getting an upset stomach or heartburn. Hope this may help.

Regards – Rune

]]> da8689f53a88cabcdafc68cb6866fe2d Rune Harboe replied to the discussion Starting Esbriet in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-esbriet/#post-30085 Tue, 28 Sep 2021 20:24:20 -0500 Reply to Starting Esbriet

Was diagnosed with IPF in June of 2026. My doctor suggested a biopsy which I did to verify I had IPF. The doctor then prescribed Esbriet. If I was going to do this again I would not go through with a biopsy, and instead ask the doctor if his treatment would be different if IPF was not verified. I may still ask him that question when I see him… Read more

]]> 2ab8ae319ee32f2483e74c6653358e3b Rune Harboe posted an update: Another quick update, Had my 2nd stem cell treatment […] https://pulmonaryfibrosisnews.com/forums/activity/p/5320/ Sun, 02 Sep 2018 19:53:56 -0500 Another quick update,

Had my 2nd stem cell treatment in early July with a checkup with my pulmonary Dr at the end of August. Based on what my Dr said, the medical community has little belief in stem cell treatment for IPF or COPD even though testimonials of patients that have gone through with the treatment claim that they have seen… Read more

]]> 0 1d1dd4cb87eb75b92150d736f72a11a9 Rune Harboe posted an update: Just a quick update - I went through with the stem […] https://pulmonaryfibrosisnews.com/forums/activity/p/2433/ Tue, 01 May 2018 23:17:53 -0500 Just a quick update – I went through with the stem cell procedure last week. Spent 2 days at the lung institute in Dallas. The procedure was painless. Was told it will take about 2 weeks before any improvement can be noticed. I should point out that I have been doing well on the Esbriet treatment and my oxygen level has been fairly constant.… Read more

]]> 2 d1338057fb4aeebbdfa3800c8d01df9c Rune Harboe replied to the discussion Best way to take Esbriet in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/best-way-to-take-esbriet/#post-12238 Tue, 01 May 2018 23:04:30 -0500 Reply to Best way to take Esbriet

I have been taking Esbriet for 2 years and had problems in the beginning with heartburns. I am taking 9 tablets a day and found that if I eat some protein before taking my tablets and some protein afterwards, I am doing fine. I eat a piece of cheese with a cracker before and after and for me that works. This may not work for everybody, but may… Read more

]]> a553ef50e5e7f132b33e4256c7e2d215 Rune Harboe replied to the discussion Stem Cell Procedure for IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/topic/stem-cell-procedure-for-ipf/#post-11573 Wed, 28 Mar 2018 08:16:24 -0500 Reply to Stem Cell Procedure for IPF

Hi Charlene,

Thank you for the additional threads regarding stem cell research. I had not seen this information before – thank you!

I am seriously thinking of going through the process and will post the results, if and when. Would be interested in getting in contact with Pat since she has gone through  the procedure. Also, I would also… Read more

]]> 3d4b15f2c5c2797f42b3d7c91b17172c Rune Harboe started the discussion Stem Cell Procedure for IPF in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/topic/stem-cell-procedure-for-ipf/ Tue, 27 Mar 2018 08:39:38 -0500 Stem Cell Procedure for IPF

I am wondering if anyone out there has considered a stem cell procedure for improving lung function for IPF patients. The Lung Health Institute I have been told has had some success with their procedure. They have testimonials on their Website that are very positive. https://lunginstitute.com/testimonials/nancy-h/

]]> c3b75883526660c6d7d81fc7dfc278eb Rune Harboe posted an update: I am curious to know if anybody has considered or used […] https://pulmonaryfibrosisnews.com/forums/activity/p/1432/ Mon, 26 Mar 2018 23:08:46 -0500 I am curious to know if anybody has considered or used the stem cell procedure as outlined by the Lung Health Institute? When I talked to them I believe I heard they tell me they have a 76% success rate in improving the lung function for IPF patients. I will talk to my pulmonary dr next time I see him about the procedure.

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