Pulmonary Fibrosis News Forums | Samona | Activity

Samona replied to the discussion Suspending pirfenidone in the forum Healthcare Questions

Fri, 30 May 2025 19:50:44 -0500

Hi, I’ve been on pirfenidone for a year now and so far the only side effects that I have noticed is the itchy skin- though I related that to just having dry skin and not hydrating properly- though now I see it might be related and the sun- I am very fair skinned- natural red head so very pale and freckles and now the sun is my mortal enemy-…

Samona replied to the discussion Saracatinib and BMS 986-207 in the forum Lung Transplantation

Wed, 11 Dec 2024 15:21:16 -0600

Reply to Saracatinib and BMS 986-207

Hi – how do you find these trials? Does your pulmonary doctor suggest them or??? I am very interested if they’re in my area.Thank you Samona

Samona replied to the discussion No lung transplant in the forum Diagnosis Information and General Questions

Fri, 22 Nov 2024 21:37:07 -0600

Reply to No lung transplant

Hi, I have had pulmonary fibrosis for over 10 years- I am now 53 – I had an exacerbation in 2020 which lowered my lung function dramatically. I am now on 02 – 24/7 and was referred to Vanderbilt Hospital in Nashville, TN in August 2024- I am overweight by 30 lbs to get put on the transplant list. Which is very hard to lose by the way when…

Samona replied to the discussion Wei Institute supplements in the forum Supplements and Non-traditional Management of PF

Tue, 16 Jul 2024 20:15:49 -0500

Reply to Wei Institute supplements

Hi -How long have you been taking the Haritaki Amazon supplements?

Samona became a registered member