-
Suspending pirfenidone
After 3 months, lost appetite and 40lbs lost, dr allows me to suspend meds for 2 wks. Some appetite returned. I want to extend longer.. How long for side effects to fade?. I want toregain weight and stamina before restarting the protocol.
-
4 Replies
-
Hi Prof
I reduced my dose rate, 2/3s two tabs x 3 times a day. In my case my appetite improved, and I’ve stopped losing weight.
I feel a lot better, happier and more alive
Cheers Mal
-
I am fixing to start taking Pirfenidone. Can you give me the pros and cons on the medicine?
-
A year ago I had a lot of problems with Esbriet,no appetite,no energy,and itchy hands and ankles.coughing. I talked with my pulmonologist.she suggested taking a break from the Esbriet.After a couple of months I went back with the lower dose for a month and the the 801 mg dose ,3 times a day.the problems were less intense and still have lazy days once in a while.the itching is every few weeks,but control with a salve .Appetite is somewhat better.Hope this helps .
-
I have been on Pirfenidone for about a year, 3 tablets 3X a day. The side effects seem to get worse over time; however, a few months ago my pulmonologist started allowing me to take a 1 day hiatus once a week from this medication. He said that the side effects can diminish quickly, but the good effects of the drug fade more slowly and I have found this to be true. I do get a break from the sour stomach. Itching less so but I use CeraVe Itch Relief lotion, which helps. Some weeks are better than others. My Pulmonologist told me that I may not see improvements from this medication for 9 months, but I saw him this week and my lung capacity has increased from 35% to 90% since I started Pirfenidone and I was able to walk 300 feet without O2 and the saturation level never dropped below 93%! I tried a couple of CBD and THC cannabis products, which are legal where I live, but saw no substantial reduction in the sour stomach.
Log in to reply.