Pulmonary Fibrosis News Forums | Vance Elliott | Activity https://pulmonaryfibrosisnews.com/forums/members/vance70726/activity/ Activity feed for Vance Elliott. Fri, 24 Apr 2026 20:13:18 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c1f2764179c1023b86db35004732bfff Vance Elliott replied to the discussion Nasal Cannula Management in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/nasal-cannula-management/#post-39123 Wed, 24 Dec 2025 04:12:05 -0600 Reply to Nasal Cannula Management

I think a longer cannula on the side works for me. It can wrap around my neck a couple times, lol, before regrouping. Also the weight of the inline water trap helps to hold it.

Merry Christmas to all

]]> 44ae2fe57ead445c576e4d729b7d9d90 Vance Elliott replied to the discussion Jascayd and Ofev in the forum Jascayd (nerandomilast) https://pulmonaryfibrosisnews.com/forums/forums/topic/jascayd-and-ofev/#post-39122 Wed, 24 Dec 2025 04:04:10 -0600 Reply to Jascayd and Ofev

Been on Ofev 100mg 2x for about 6 years now. 1 year ago I participated in a trial for Tyvaso for IPF. Finished the year and since it was an open ended trial, they now have me on the real Tyvaso. ( Quite sure i had the placebo the whole year. No side-effects. ) Cough with every treatment. Interesting to note that one person here said their…

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]]> 576bd7b975cc571cb9522e528abe45d7 Vance Elliott replied to the discussion Let's talk about supplemental oxygen in the forum Supplemental Oxygen and PF https://pulmonaryfibrosisnews.com/forums/forums/topic/lets-talk-about-supplemental-oxygen/#post-39121 Wed, 24 Dec 2025 02:13:54 -0600 Reply to Let's talk about supplemental oxygen

For those watching your oxygen level closely, I recommend you check the Wellue o2 ring. Cost is around $150 for the Bluetooth model. It has been very durable and will store several wearings until you download it to the application on the phone. Also has a vibration function when you go below the set point for oxygen or above the set point on…

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]]> ec49f5d300ab701bdd3569a58bfaf153 Vance Elliott replied to the discussion One Year in! in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/one-year-in/#post-37309 Wed, 24 Jul 2024 13:00:54 -0500 Reply to One Year in!

I had IPF diagnosed with biopsy 5 and 1/2 years ago. Came to the conclusion that my life is my life. Spent 50 plus years taking it for granted. Your in charge! If your capable mentally and physically you got to get going . My pulmonologist always said it was important to maximize the good part of your lungs that you still have.

Started Ofev…

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]]> 75fb8459c532c2ecbe0e64fe468dd3fc Vance Elliott replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-34845 Fri, 07 Apr 2023 13:59:02 -0500 Reply to Split Ofev doseages

I was diagnosed with ipf Jan 2019. Started 300 MG ofev for 6 months. Liver couldn’t handle it. Been on 200 MG since. Can’t do greasy or milk with lactose. Constant roller coaster with digestive system, but able to keep under control with diarrhea meds most of the time. Avg a 3 to 5 day holiday about every 3 months. GREAT news is that the ipf… Read more

]]> 46ddc958567bf51b7040647bd6a05dfb Vance Elliott became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/34585/ Wed, 27 Jul 2022 19:54:22 -0500 1