Dear Patricia ❤️ Honestly I do not know, transplantations were done extremely rarely in my country before 2021 when they start to develop. I am not sure about any supporting groups here. Probably there will be many ups and downs, we will be looking for answers then. We will pray for you ❤️

I will only add that Ofev treatment was not working to my Dad. Last tests showed the progression of ipf and Doctors wanted to stop the treatment. He was taking the pills for a year. He did not really had side effects- dirrahea that started after some time turned out to be just infection.

Hi! I wanted only to add that Ofev did not work on my Dad compeletly. The problem I described here was because of infections, which we connected to new Ofev treatment.

Hi All❤️❤️ Thank you all for answering!

Thank you Julian!

Thank you for your answer Raymond.

Thank you for your answer ❤️

Hi Steeve, thank you for your answer.

Thank you for answering Keith ❤️

Hi! Turned out to not to work on him… Latest tests shows no response and IPF was only worse. Couple days after information the treatment will be cancelled we got information that there are new lungs for my Dad ❤️

Larry, thank you for answering.

Phil, thank you for sharing this information.

Dear All,

It is been almost a month that my Dad recieved a double transplant. I haven’t been here for a while, difficulties connected to the illness broke me and I needed a breake. Thank you all for your support that me and my family received here❤️ Transplant was a miracle, in my country lungs transplantations are still something new and I…

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Thank you a lot for your answer. We collected all surveys now and waiting for a decision if he can be on the list. 🙏

Thank you All for your answers. I am very thankful, they were very helpful.

Dear All, I have a question if you started suffering from diarrhea soon after starting Ofev or after some time? My Dad takes it since January and just now the side effect occured. We are wondering if it could be just a virus, because ealier he was compeletly fine. We also thought the Ofev does not work on him.

Hi, I am so sorry for your loss. Your story really moved me, life is unfair…

Hi 👋 My dad is now on oxygen 24/7 and we are going to visit pulmonologists with experience in IPF, which is 5 hours driving from our home. We are looking now for the most comfortable movable oxygen concentrator to take it for the trip. Are there any you could recommend us? We were thinking about philips everflo.

Hi 👋 Just wanted to share our new hopes when it comes to my dad. He is now on o2 24/7. 20 of May we are going to meet a doc with experience in IPF in capital city. I think transplantation could be the only way now. He is on ofev since January, but it only gets worse. Just wanted to share my emotions here and leave the note for someone looking…

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Hi Buddy38, Thank you for answering ❤️

Hi Msherbert, Thank you for your answer. Turned out it was flu. He does not suffer from fevers anymore, of course nothing will not stop the PF, but I am happy he has no fevers anymore. I started to believe they are connected with PF and it will remain like this.

Hi Adele, Yes we measure the temperature with a thermometer- shows around 38 -39Celsius. It is happening in the evenings every couple days. We do not think it is connected with any other illness as it is happening so randomly, then couple of days are ok… He his seeing a doctor today.

Thank you for your message.

Hi! As in the title 😉 My dad started to have fever 2-3 times a week. At the beginning we thought he just caught a flu, but it is happening too often. It looks like it happens even with a small effort such shopping. If so, do you have any proven methods to avoid this?

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Dear Sona, Thank you for you message ❤️ It is so helpful it is still possible to have a wonderful life. Wish you all the best and greetings from Poland ❤️

Dear Don, I am so thankful for your message ❤️ All the best for you, greetings from Poland

Hi… My name is Joanna and my dad started taking ofev a week ago. He started feeling worse after getting covid in 2020, was 2 yrs on steroids. Now we observe worsening of the disease, doctors prescribed ofev. He is much worse on the treatment, it is not about dirrahea but just breathing. Have someone from you ever experienced this? Shortness of…

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