Biography

Name

Deb
Nickname

Deb
Year of Birth

1960
Gender

Female
Location

Long Island, New York
Relationship

Patient
Short Bio

Diagnosed with IPF and acute asthma 2 years ago. I’m on Ofev and Dupixent. These 2 meds have given me much more energy to do the things I love, like going to the beach to sit by the waves and I enjoy going to concerts too. I do have bad side effects occasionally and when it gets to be too much, I need to take a break for a few days.

The  pulmonologist says I have progressive scarring.  I believe the new med would be wonderful if it can reverse this.
Type of Diagnosis

IPF
Treatment / Medical Facility

Nebulizer and Asthma inhaler
Current medication regimen

Ofev and Dupixent
Lung transplantation status

considering later
Supplemental Oxygen

no
Best advice for PF symptom management

Anxiety can make exasperations much worse. I always eat chicken and Rice with the evening Ofev, I’m able to eat what I want during the day

 

 

 

 
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

approx 2 years
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