A CAT scan will show the level of fibrosis.

The results of my recent 6 min walk test indicated that I qualify for supplemental oxygen during exertion. I now have a OxyGo Next oxygen concentrator. I am very active so I’m trying to adapt portable oxygen in my daily life.  I also believe that I should try to keep my oxygen level as closes as possible to that of a normal person (94 -97). … Read more

I have IPF two weeks ago my Dr prescribed 2 20mg prednisone/day for 7 days. I believe the steroid burst help my daily activities  Dr says it can be repeated when necessary.  The steroid did increase my morning BG number but they returned to normal as soon as I stopped taking them.

 

dave

As I read thru IPF articles I find many patients are prescribed Prednisone by their pulmonologist.  What are the benefits of taking Prednisone?

Yes pass this on.  My pulmonologist said “As far as I know this has only been demonstrated in mice.  No human studies have replicated this, and as such no actual medication exists that is FDA approved for use in IPF.”  My next visit is June 2 I will dig a little deeper with him.

Thanks for your help

dave

 

<p class=”MsoNormal”>I received the link to this article from one of my FB IPF groups.<span style=”mso-spacerun: yes;”>  </span>This is the first article I have seen that says this can “reverse idiopathic pulmonary fibrosis”.<span style=”mso-spacerun: yes;”>  </span>I’m curious what everyone’s thoughts are?</p>
<p class=”MsoNormal”>A new study… Read more

Thank you good interview, I am sharing with my family.  I am approaching my one year anniversary of being diagnosed with IPF  also one year on  Esbriet. I need to learn everything I can about IPF .

Thanks

Dave

Thanks Charlene for the research paper. I read some of it but I’m a “gear head” so I let my daughter Angie (medical technologist) read it.  Her reply “The section on page 12 states the results indicate that statins were able to attenuate established lung fibrosis in the mouse.  Attenuate means to lessen the amount or reduce”.  Looks like the… Read more

<p class=”MsoNormal”><span style=”font-size: 7.5pt; line-height: 115%; font-family: Georgia, serif; background-image: initial; background-position: initial; background-size: initial; background-repeat: initial; background-attachment: initial; background-origin: initial; background-clip: initial;”>Hi Charlene this is very interesting I… Read more

<p class=”MsoNormal”>Just sent to Apple feedback  “I have IPF and knowing my blood oxygen level is very important me.Is this a feature Apple is considering for the Apple watch?”</p>
Thanks

dave

 

Two days after my open lung biopsy May 13 2019 my Dr confirmed I have IPF. He said there were two drugs available to slow down the progression of this disease Esbriet and Ofev. He explained the side effects of both and recommended I take Esbriet. The main reason, I am very active and with Ofev you need to know where the bathrooms are located.… Read more