| Short Bio |
I was approved for Galapagos study and then in July was told ctscan was list and had to be resent to Galapagos and to fail me as they wouldn’t be able to read for 5-7 days. Then waited about a month for dr to get me back in and then told EKG wasn’t good as QT interval too long, but still trying to get me in as last EKG better. Frustrating and poor follow up and communication from Dr. We are now willing to go anywhere to be in a trial even another country as only hope for my diagnosis!
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| How long have you or the person that you are caring for had PF? |
4 years
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