Biography

Name

Brigitte Hordern

Nickname

brigitte-hordern

Year of Birth

1965

Gender

Female

Location

Australia

Relationship

Patient

Short Bio

 

diagnosed age 55.Still 55 now lol.C.O.P.D diagnised age 46.Not medicated..only for my emphysema asthma and fluid on the lungs and crhonic bronchitis.

Im so so scared. My general practitioner is not treating my P.F as yet.Waiting to see my old pulminologist.I got so well for a few years.No.w this.CT scan showed P.F. Ive lost 15kilos in 3 months!!!!No appetite. Feel like ive run a marathon after taking 20 steps. I dont know what to do.
I have a full time carer as I suffer many physical and mental health issues.PTSD…bi polar…major panick attacks.B.P.D….anxiety.Major depression.Dissociative disorder.Its all too much.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Waiting to see pulminologist.Hospital wont treat me ever!

Current medication regimen

Prednisone 50mg a.m…fluid tablets…spiriva a.m..ventolin and ateovent 4hrly through nebululizer.Continual antibiotics.

Lung transplantation status

ineligible

Supplemental Oxygen

no

Best advice for PF symptom management

I have no idea what to advise. SORRY.Newly diagnosed and I dont know what to believe.Am I going to die soon???All I know Ive gone down big time and I think my asthma for 50 yrs was wrongly diagnozed.I think Ive had P.F for many many years.My pulminologist years ago should have done testing.Im so distraught .Disillusioned. Confused. And dont want to live.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

Unkown…only just diagnoses

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