Brigitte Hordern
Biography
Name | Brigitte Hordern |
Nickname | brigitte-hordern |
Year of Birth | 1965 |
Gender | Female |
Location | Australia |
Relationship | Patient |
Short Bio |
Im so so scared. My general practitioner is not treating my P.F as yet.Waiting to see my old pulminologist.I got so well for a few years.No.w this.CT scan showed P.F. Ive lost 15kilos in 3 months!!!!No appetite. Feel like ive run a marathon after taking 20 steps. I dont know what to do. |
Type of Diagnosis | PF of known aetiology |
Treatment / Medical Facility | Waiting to see pulminologist.Hospital wont treat me ever! |
Current medication regimen | Prednisone 50mg a.m…fluid tablets…spiriva a.m..ventolin and ateovent 4hrly through nebululizer.Continual antibiotics. |
Lung transplantation status | ineligible |
Supplemental Oxygen | no |
Best advice for PF symptom management | I have no idea what to advise. SORRY.Newly diagnosed and I dont know what to believe.Am I going to die soon???All I know Ive gone down big time and I think my asthma for 50 yrs was wrongly diagnozed.I think Ive had P.F for many many years.My pulminologist years ago should have done testing.Im so distraught .Disillusioned. Confused. And dont want to live. |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | Unkown…only just diagnoses |
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