It really was not that hard. I just quit using it. I carried my oxyemeter with me and went as far as I could without oxygen. Then stopped and sat a little while till my reading gotback to 96 and kept going . I thane pretty much knew my limits and I can lead a pretty normal life without oxygen!!!

I am probably older than the rest of you, 86. I was diagnosed in 2015. At the time I went to rehab and it got rid of any symptoms. In 2019 it came back and I was put on OFEV and oxygen. After 2 years on OFEV I had to get off. The side effects were too much. I also weaned myself off of oxygen

I use oxygen only before I go to bed for about…

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I am 86 !! I found out I had IPF in 2020. I was told that I have had it since 2015. I took OFEV for about 2 years. I could not take it anymore. It had me almost bedridden. I was on oxygen for about two years. I weaned myself off of oxygen. I manage my IPF on my on. I know my limits!! I hope I can make 90!!!

Denny, I woulzlike to know how to order that drug from Russia. Do you have more information on it

Tysaco is approved only for pulmonary hypertension!!! It is about two to phase 3 trials for I P F. How do your doctor prescribe this for you. I have been trying to figure a way to get the medication!!! How does the Tysaco work on you!! How about side effects!! Please answer!!!

The drugs name is Tabasco!!!!

Tabasco has been approved for pulmonary hypertension!!! The company has gone directly to phase 3 trials for I PF!!! They are opportunistic that this will work!! Wondering if anyone has got there doctor to give it to them with a diagnosis of pulmonary hypertension!!!!

I read on this website and through other media about many new drugs for IPF. Most of the are in phase 2-3. They have had very good results with a lot of them. But , with the FDA, they will not be available for 5 years. By that time most of us suffering from this disease will be dead!!! Why can’t the more serious cases of IPF have these new drugs…

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Hi I started talking OFEV after I had IPD for 5 years and did not know it!!! The first 6 months I did not have a side effects taking the large dose of OFEV. I the beginning to feel terrible all the time!! We switched to the smaller dose and that worked for about 6 months! I got off OFEV entirely a couple of years ago. I feel good !! IPF has…

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I have two Imogene !! One goes to 3 the other goes to 6. They are both portable!! I have had IPF since 2016! About 2020 I started using oxygen with tanks and Imogene machines!! I used them for about 1 year. I weaned myself off of oxygen altogether. I I’m 85 1/2 years old. I can do whatever I want. I do not exert myself. I ride the scooter in the…

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