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  • Bulldog

    Member
    February 27, 2024 at 7:05 pm in reply to: Life span

    I was diagnosed with asbestosis on September 9, 2017. My symptoms worsened over time until my pulmonologist prescribed Ofev, which I have been taking since roughly mid-2021. My symptoms are debilitating but have “stabilized” over time. My PFTs were once DLCO 32% down from original 58%, but have remained stable in the high 30th percentile since OFEV. Don’t get me wrong – I am on supplemental O2 24/7 4 sedentary 7-8 exertion and my exertional dyspnea is particularly a problem.

    But with medication and care, it’s been almost 8 years for me. Mayo has as study saying ~10 years from diagnosis is mean death age for those with severe asbestosis. If the levee don’t break and the river don’t rise…. Good luck!