Carolyn

I was diagnosed with IPF in 2015 and been on Ofev since then. Just this past month I have started coughing. I cough at intervals and have brought phlegm  up just a few times. I feel like I have post nasal drip all the time. I currently take 5mg of prednisone daily and on occasions I have taken 50 mg for five days. I would like to know if anyone…[Read more]

I have read numerous articles on this disease and can’t say I’m any wiser.  I am on 02 24/7.  I see people on either Esbiret or Ofev switching the drug. With my Ofev there is a support group provided by the drug company that I correspond with.   They have a nurse on call 24/7. I just started with them and they will have a nurse call me monthl…[Read more]

Thanks for sharing your stories about the dizziness.

Carolyn

I have experienced dizziness sometimes in am after breakfast. I have days to hen it lasts on and off throughout the day just sitting,standing , walking. I have not been too successful in getting it figured out. I do have other conditions ( congestive heart failure, digestive issues). This week my dr prescribed a 6 day course of prednisone and I…[Read more]