Biography

Name

Marilyn Chancellor

Nickname

marilyn-chancellor

Year of Birth

02/24/1959

Gender

Female

Location

Cedar Hill, TX

Relationship

Patient

Short Bio

Hello,

I was originally diagnosed with LUPUS in 1994, since the diagnosis I have accumulated a plethora of autoimmune disorders that have catapulted  me into Intestinal Pulmonary fibrosis derived from Scleroderma along with PAH being the driving diagnosis for my disability confirmation.

I am so excited to be able to become a part of whatever is offered here!!  I have been visiting this site and reading articles for years. It was THIS FORUM that motivated me to ask my Doctor to provide confirmation for my eligibility for OFEV which I am currently taking for a year or so.

I would like to stop here and let EVERYONE know how HOPEFUL this alliance has changed my life by believing that the CHRONIC can be predisposed with new clinical trial medications that even if they prolong life for a year or years, it’s one step closer to a CURE without having to look forward to a double lung transplant with probably additional organs being needed to stabilize my longevity!

HELLO FAMILY ?

Marilyn C

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

UTSW Dallas Tx ; Methodist CHARLTON Duncanville TX

Current medication regimen

OFEV AMBRISEN MYCOPHENALATE TADAFIL

Lung transplantation status

considering later, currently in evaluation process, to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Something that I myself am embarrassed to ADMIT and that is to COMMIT to a strict regimen of DIET; EXERCISE AND CONTINUED RESEARCH REFERRAL UPDATES!

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

9yrs

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