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	<title>Pulmonary Fibrosis News Forums | Charlene Beck | Activity</title>
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				<title>Charlene replied to the discussion Sleeping with head elevated in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/sleeping-with-head-elevated/page/2/#post-37997</link>
				<pubDate>Sat, 22 Feb 2025 23:04:00 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/sleeping-with-head-elevated/page/2/#post-37997"><span class="bb-reply-lable">Reply to</span> Sleeping with head elevated</a></p> <div class="bb-content-inr-wrap"><p>Hi, dx myself in 2020. I am on twice day Ofev.  O2 at night.  I too have this question on position of sleep&#8212; I am told his awful am and nitetime wet cough is Post nasal drip but it has persisted for a year now w no relief.   Any thoughts appreciated.   Due to a support grp on zoom thru this site- I am now going to get a second opinion on&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-44164"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/sleeping-with-head-elevated/page/2/#post-37997" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene replied to the discussion Elevated sleeping position in the forum PF Life: 50+</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/elevated-sleeping-position/#post-37925</link>
				<pubDate>Sat, 08 Feb 2025 01:12:13 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/elevated-sleeping-position/#post-37925"><span class="bb-reply-lable">Reply to</span> Elevated sleeping position</a></p> <div class="bb-content-inr-wrap"><p>I have never heard to sleep elevated?   I have an awful wet type productive cough at night and am told I have post nasal drip?  I cough a lot and use oxy at night and sleep is restless and disrupted every few hours.   Any input most welcome.   I am single and feel a bit lost and lonely&#8230;. would love to talk w someone on occasion about IPF.  &hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-44017"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/elevated-sleeping-position/#post-37925" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene replied to the discussion Mental health and living with PF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/mental-health-and-living-with-pf/#post-37924</link>
				<pubDate>Sat, 08 Feb 2025 01:06:52 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/mental-health-and-living-with-pf/#post-37924"><span class="bb-reply-lable">Reply to</span> Mental health and living with PF</a></p> <div class="bb-content-inr-wrap"><p>I think i called Sam- steve.  sorry. i cant figure out how these messages work ???? Char</p>
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				<title>Charlene replied to the discussion Acute Exacerbation in the forum Healthcare Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/acute-exacerbation/#post-37923</link>
				<pubDate>Sat, 08 Feb 2025 01:02:48 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/acute-exacerbation/#post-37923"><span class="bb-reply-lable">Reply to</span> Acute Exacerbation</a></p> <div class="bb-content-inr-wrap"><p>great question.  I keep hearing this term but dont have any idea what it could look like but Steve gave me some insight.  More examples would help me tho.</p>
<p>I have IPF since 2020 appx and have chosen to NOT have lung transplant&#8211; </p>
<p>I remain at home mostly so not a lot of exposure to others.  I walk daily and i am on Ofev w little to no side&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-44015"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/acute-exacerbation/#post-37923" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/page/2/#post-37000</link>
				<pubDate>Sat, 04 May 2024 02:09:34 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/page/2/#post-37000"><span class="bb-reply-lable">Reply to</span> How quickly can pulmonary fibrosis progress?</a></p> <div class="bb-content-inr-wrap"><p>thank you for asking.  I was diagnosed in 2020 due to a cough and now am deteriorating per the test assessments.</p>
<p>I am on Ofev.   I need encouragement .  I am fearful and anxious.  I cant sleep due to cough.  I am single and 64.    I am not sure i want to chk into Lung transplant.   Had 3 fam members w IPF also.</p>
<p>   any words of encouragement would&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-42248"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/page/2/#post-37000" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene started the discussion continue OFEV if my CT and PFTS are worsening? in the forum Ofev (Nintedanib)</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/continue-ofev-if-my-ct-and-pfts-are-worsening/</link>
				<pubDate>Sun, 16 Apr 2023 01:48:41 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/continue-ofev-if-my-ct-and-pfts-are-worsening/">continue OFEV if my CT and PFTS are worsening?</a></p> <div class="bb-content-inr-wrap"><p>I am lost and discouraged.    My 2 brothers died of IPF this past yr.   My mom died of it as well.</p>
<p>I am afraid and sad and just have no idea what to research, read, explore,&#8211;or what supplements to take w OFEV&#8212; or what i should do to prolong my life.  I am fearful and really discouraged.   Where can i find a support grp that will emotionally support me?</p>
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				<title>Charlene posted an update: i would like someone to let me know that this is able to [&#133;]</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/35212/</link>
				<pubDate>Sun, 25 Sep 2022 00:32:07 -0500</pubDate>

									<content:encoded><![CDATA[<p>i would like someone to let me know that this is able to be seen ?  what do you know about Ofev and taking w food issue?   i do not always do  that&#8230;.  also do you feel air cleaner machines will help w IPF? thanks chyna</p>
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				<title>Charlene replied to the discussion Is ipf genetic? in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/is-ipf-genetic/#post-32789</link>
				<pubDate>Sun, 31 Jul 2022 02:33:31 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/is-ipf-genetic/#post-32789"><span class="bb-reply-lable">Reply to</span> Is ipf genetic?</a></p> <div class="bb-content-inr-wrap"><p><strong>my mother died of IPF at age 72, My older bro. just died at age 70- &#8220;Cardiac&#8221; but not conclusive&#8212; </strong></p>
<p>My brother diagnosed w IPF about 6 yrs ago and anticipating a lung transplant.</p>
<p>I was diagnosed 2 years ago w IPF and chest biopsy.</p>
<p>My other sisters have a chronic cough although deny it and not diagnosed.</p>
<p>why does it matter if it is all&hellip;<span class="activity-read-more" id="activity-read-more-34639"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/is-ipf-genetic/#post-32789" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene replied to the discussion How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib)</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/how-are-long-term-4-years-ofev-users-doing/#post-31428</link>
				<pubDate>Sun, 20 Mar 2022 01:48:00 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/how-are-long-term-4-years-ofev-users-doing/#post-31428"><span class="bb-reply-lable">Reply to</span> How are long-term (4+ years) OFEV users doing?</a></p> <div class="bb-content-inr-wrap"><p><strong>i have been diagnosed bout yr ago and started on OFEV 150mg  2xd w no side effects.  cough now gone or nearly gone.   I had to beg and cajole to get the drug</strong></p>
<p>my brother who has IPF also was on this drug 6 yrs and now progressing to need for transplant.</p>
<p>I am scared and feel fearful a lot.   my mom and brother died of I{PF and now my younger bro&hellip;<span class="activity-read-more" id="activity-read-more-32304"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/how-are-long-term-4-years-ofev-users-doing/#post-31428" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene posted an update: I need .   is there any connection between leaking [&#133;]</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/28828/</link>
				<pubDate>Mon, 09 Aug 2021 20:16:01 -0500</pubDate>

									<content:encoded><![CDATA[<p>I need .   is there any connection between leaking silicone in chest lymph nodes and IPF</p>
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				<title>Charlene posted an update: I need input.  I had chest lung biopsy end of Jan. [&#133;]</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/25718/</link>
				<pubDate>Thu, 25 Feb 2021 15:31:23 -0600</pubDate>

									<content:encoded><![CDATA[<p>I need input.  I had chest lung biopsy end of Jan. got results and inconclusive.  septal thickening but mostly shows inflammation.   pulmonologist seemed baffled due to my moms death and bro diagnosis w IPF&#8211; both IPF.   he asked about birds and pets? mold and cats????? no to birds but have 2 cats.  Input???? chyna</p>
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				<title>Charlene replied to the discussion New diagnosis age 61 in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/#post-27419</link>
				<pubDate>Sun, 21 Feb 2021 21:03:15 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/#post-27419"><span class="bb-reply-lable">Reply to</span> New diagnosis age 61</a></p> <div class="bb-content-inr-wrap"><p>yes, i do have IPF&gt;  yes  i have a pulmonologist &#8212; I have had an open chest biopsy/lung biopsy.  thank you for reaching out to me.   I have fears of the prognosis and the progression.<br />
I walk 4 miles per day uphill. (treadmill) and am thin./  My mom died of it and my brother has IPF also.<br />
I seems sad to think of such a poor prognosis&#8230;. how&hellip;<span class="activity-read-more" id="activity-read-more-25644"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/#post-27419" rel="nofollow"> Read more</a></span></p>
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				<title>Charlene replied to the discussion New diagnosis age 61 in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/#post-27405</link>
				<pubDate>Sun, 21 Feb 2021 02:39:52 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/#post-27405"><span class="bb-reply-lable">Reply to</span> New diagnosis age 61</a></p> <div class="bb-content-inr-wrap"><p>thank you for reaching out.   i appreciate your words very much.  I am thin and walk about 4 miles per day.  live in rural area and not much choice on Pulmonologist.   am getting my biopsy diagnoses this wk and med?</p>
<p>do u suggest going on meds asap ?</p>
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				<title>Charlene posted a new activity comment</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/25481/#acomment-25483</link>
				<pubDate>Sat, 13 Feb 2021 02:59:12 -0600</pubDate>

									<content:encoded><![CDATA[<p>i cant understand how it  cant be genetics&#8230;&#8230;  makes no sense that fam members would have same exact diagnosis&#8230;&#8230;..  yes i do think others in fam could be at risk.   You can model healthy lifestyle- not smoking. reg exercise  healthy weight.  good health habits.<br />
I just had the chest biopsy and out of ICU in a half a day and discharged&hellip;<span class="activity-read-more" id="activity-read-more-25483"><a href="https://pulmonaryfibrosisnews.com/forums/activity/p/25481/#acomment-25483" rel="nofollow"> Read more</a></span></p>
				<strong>In reply to</strong> -
					<a href="https://pulmonaryfibrosisnews.com/forums/members/chyna/" data-bb-hp-profile="9027" rel="nofollow">Charlene</a> <span class="activity-to">to</span> <a href="https://pulmonaryfibrosisnews.com/forums/members/missnene/" data-bb-hp-profile="12001" rel="nofollow">Renee</a> <a class='bp-suggestions-mention' href='https://pulmonaryfibrosisnews.com/forums/members/renee/' rel="nofollow">@renee</a> 
my mom died w IPF and my brother has it severe anad my pulmonologist says mine is not genetic.   why???					]]></content:encoded>
				
				
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				<title>Charlene: @renee 
my mom died w IPF and my brother has it severe [&#133;]</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/25481/</link>
				<pubDate>Sat, 13 Feb 2021 01:48:07 -0600</pubDate>

									<content:encoded><![CDATA[<p><a class='bp-suggestions-mention' href='https://pulmonaryfibrosisnews.com/forums/members/renee/' rel="nofollow">@renee</a><br />
my mom died w IPF and my brother has it severe anad my pulmonologist says mine is not genetic.   why???</p>
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				<title>Charlene posted a new activity comment</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/25466/#acomment-25480</link>
				<pubDate>Sat, 13 Feb 2021 01:46:39 -0600</pubDate>

									<content:encoded><![CDATA[<p>i would like that too.  I feel overwhelmed.  chyna</p>
				<strong>In reply to</strong> -
					<a href="https://pulmonaryfibrosisnews.com/forums/members/meraltemel/" data-bb-hp-profile="3348" rel="nofollow">Meral temel</a> posted an update <a class='bp-suggestions-mention' href='https://pulmonaryfibrosisnews.com/forums/members/charlene-marshall/' rel="nofollow">@charlene-marshall</a> , thank you so much. Can you please please share with me your treatment, recover process? My gmail adres is <a href="mailto:meralt@gmail.com" rel="nofollow">meralt@gmail.com</a>. i have facebook, whatsup as well. Thank you so much					]]></content:encoded>
				
				
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				<title>Charlene posted an update: @jross 
pulse ox can be effected by several factors.</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/25479/</link>
				<pubDate>Sat, 13 Feb 2021 01:45:42 -0600</pubDate>

									<content:encoded><![CDATA[<p>@jross<br />
pulse ox can be effected by several factors.   </p>
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				<title>Charlene started the discussion New diagnosis age 61 in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/</link>
				<pubDate>Wed, 10 Feb 2021 17:50:08 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/new-diagnosis-age-61/">New diagnosis age 61</a></p> <div class="bb-content-inr-wrap"><p>i asked for all the tests as PCP did not feel a need&#8230;.. I just had chest lung biopsy-  awaitn results but appears to be IPF family genetics&#8211; I am scared.   prognosis scares me.  help</p>
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				<title>Charlene became a registered member</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/25365/</link>
				<pubDate>Mon, 08 Feb 2021 19:38:40 -0600</pubDate>

				
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