Renee

Yes, l would be interested in joining you

I just made a trip to the Grand Canyon. I was off of my Ofev for 10 days. According to my Doctor it was not a big deal to get off of it because l have no other underlying medical problems. She said if l were on any meds dealing with an infection, that would be a different story.  Overall I am healthy, except for the PF. I am not downplaying this…[Read more]

Exactly Richard, it does matter. Our children and grandchildren are in danger of having this terrible disease. I don’t want my granddaughter and her offspring to be worried about it. My son has passed so that leaves my worries about our little girl and her future.

My two brothers have died from IPF. I was diagnosed 2 years ago and my doctor keeps telling me that it isn’t a hereditary disease.  It appears to me if all of these reporting about different family members testing positive for IPF, then is would be familiar.

Hi Liz,

1. I am on Breo once a day but honestly can’t say if it’s helpful. I don’t have asthma so really not sure why I am on it, but doc wants me to stay with it.

Hi Augusta,
I coughed for a year before finally getting the diagnosis of IPF. I started on Ofev in January of this year and my coughing has almost disappeared. I am convinced that the Ofev has helped. The side effects can be bad at times, but right now and l will take that over the constant hacking anyday😀. Hopefully you can get some relief.…[Read more]

I too was just diagnosed with IPF. I have 2 siblings that had a definite diagnosis of IPF. My doctor says its nit genetic, but still makes me wonder about 3 of 6  developing this horrible disease.  They both only lived less than 3 years after the diagnosis.