Biography

Name

Susan
Nickname

cullen5518
Year of Birth

1968
Gender

Female
Location

Palatine, IL
Relationship

Patient
Short Bio

Hi, I’m Susan.  I joined this party in 2018 with a diagnosis of scleroderma.  I currently use oxygen for exercise, but otherwise modify activities to not use oxygen.
Type of Diagnosis

IPF
Treatment / Medical Facility

Northwest Community Hospital
Current medication regimen

mycophenolate
Lung transplantation status

considering later
Supplemental Oxygen

yes
Best advice for PF symptom management

Keep your body strong so that less oxygen is needed to do activities.  Pulmonary rehab is a MUST!
Are you currently taking an anti-fibrotic medication?

no
How did you find us?

Other
How long have you or the person that you are caring for had PF?

I was diagnosed in 2018
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