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Donna

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@daisyd

I was originally diagnosed Early Stage 5 yrs. Ago with no change til this year my most recent CT showed. I have switched to a new Pulmonary Dr. at UTSW in Dallas and has done new testing including a slew of autoimmune testing which to my surprise one came back as Very High and he has referred me to a Rheumatologist. I had a Total Colectomy a […] View
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    Donna replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 2 weeks, 3 days ago

    I was on the phone with my prescription insurance for 3 hours yesterday. They want to charge me my next fill for Pirfenidone $900 when I could get it with the TX Drig Discount Card at the local Phsrmacy for $284. They could and would special order it. My insurance said it is not one of their approved Pharmacies and they would not reimburse me. I…[Read more]

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    Donna's profile was updated 3 weeks, 5 days ago

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    Donna replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 3 weeks, 5 days ago

    If you have never gone to the VA for health issues how would you get started if you needed to? My Husband has very good Private Insurance but, of course there is a deductible and coinsurance amounts til you meet your max. My prescription Specialty insurance is helping out with Perfenidone (Esbriet) to a small degree which will help til I get to my…[Read more]

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    Donna replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 1 month ago

    Just started Esbriet on my second week. I was diagnosed 5 years ago my First Pulmonary Dr. never discussed medicine with me. This year I finally decided after being really sick I had to find a. Ew Pulmonary Dr. I had my CT and to my surprise there had been a change with my lungs. I for the first time was scared.
    My new Dr. didn’t waste any time g…[Read more]

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    Donna replied to the topic Medication Storage & Transport in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month ago

    I am on so many meds for different things if we have anyone come over I have to scoop them up and move them all out of site. I normally keep hem on the kitchen island one end of it. I don’t want to look like a pharmacy to someone who visits so I just put it out of site than have to bring it all back out and set it all back up again. I liked the i…[Read more]

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    Donna replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 1 month, 2 weeks ago

    How often are liver tests done? My bloodwork has been a mess for awhile going to a Hematologist.

    After weeks dealing with my Compound  Pharmacy finally got a ship date for delivery Tuesday. They even came up with a co-pay savings program to help me. At first they were very ugly and unhelpful last week.  I thought after being transferred so many m…[Read more]

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    Donna replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 months, 3 weeks ago

    My Hematologist is testing me to see if I am immunocompromised since I struggle so much to get over anything I catch. So far my One of my Ig counts are low and I think for insurance purposes she will have to repeat before an Infusion. She said if I get the Infusion I would feel so great.
    I had to get 2 Iron Infusions that is how I ended up with a…[Read more]

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    Donna replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago

    I would be interested as well.

     

    Donna

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    Donna replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 2 months, 3 weeks ago

    I have had all my COVID Shots and Booster

    My Husband caught COVID even though we tried to take precautions living in same home I caught it. I had Pneumonia at the time plus underlying Asthma.  Dr. Prescribed Antibiotics and Plaxovid.

    After 2 months still coughing a lot  after  3 rounds Antibiotics cough still not gone. I was not coughing be…[Read more]

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    Donna posted an update 3 months ago

    I was originally diagnosed Early Stage 5 yrs. Ago with no change til this year my most recent CT showed. I have switched to a new Pulmonary Dr. at UTSW in Dallas and has done new testing including a slew of autoimmune testing which to my surprise one came back as Very High and he has referred me to a Rheumatologist.
    I had a Total Colectomy a year…[Read more]

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    Donna became a registered member 3 months, 1 week ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 months, 1 week ago

      Thanks for joining the PF forums Donn. Welcome!

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