Biography

Nickname

dan-hughes

Age

1960

Gender

Male

Location (Country/State)

Washington, D.C.

What best describes you?

Patient

Short Bio

July 2017 I was referred to a pulmonologist after a CT scan of my lungs.  The pulmonologist referred me to the Advanced Lung Disease clinic at INOVA Fairfax hospital for a full workup including bloodwork. The initial diagnosis was IPF.

when the bloodwork returned one test was positive for Scleroderma.

I was started on Prednisone to control the inflammation and cough and 2,000 mg of Cellcept (Mycophenolate). In the summer of 2018, Prednisone was discontinued and Cellcept was increased to 3,000 mg.

March 2019 they tested my blood again and it returned negative for Scleroderma.  My lung function was down and they prescribed supplemental oxygen for sleep and exercise 2lpm.  My diagnosis was changed to IPF and Ofev was prescribed at 150mg in addition to 3,000mg of Cellcept.  So far no problem with taking Ofev.

Never a smoker. No industrial exposure.

Since 2017 I have been reading PF News.

Type of Pulmonary Fibrosis?

IPF

How long have you or the person that you are caring for had PF?

3 years

How did you find us?

PF News Website

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