Biography

Name

maryann

Nickname

diabenleo

Last Name

winters

Year of Birth

1941

Gender

Female

Location

Central NEw York

Relationship

Patient

Short Bio

I was diagnosed with IPF in 2013 and then in 2015 I was diagnosed with RA which was determined to be the cause of the PF.  I am now also receiving treatment for PH type III from or associated with lung disease.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

URMC, Rochester NY

Current medication regimen

OFEV

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

yes

If yes, which anti-fibrotic medication are you on?

Ofev

How did you find us?

How long have you or the person that you are caring for had PF?

11 years

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