Gina Myhill-Jones
@Gina Myhill-Jones
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Joined Mar 2023 •
Active a year ago
Biography
Name | Gina Myhill-Jones |
Nickname | gina-myhill-jones |
Year of Birth | 1958 |
Gender | Female |
Location | BC Canada |
Relationship | Patient |
Short Bio | Cowgirl, glass artist…and now PF Patient. It’s been a ride. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Okanagan Lung Center |
Current medication regimen | Pirfenedone |
Lung transplantation status | considering later, to be determined |
Supplemental Oxygen | yes |
Best advice for PF symptom management | …. Avoid the “ snake oil” cures. Yoga is nice, not a cure. Chiropractic, same. Naturopathic medication, nope. All manage symptoms true, and it’s great to stay active and practice self care !!! But there is no magic hidden “ cure”. Spend that money on a nice tropical vacation…. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | Other |
How long have you or the person that you are caring for had PF? | 2 yrs as of 2022 |
Privacy Policy and Terms of Use | I agree |