Pulmonary Fibrosis News Forums | George Manolakis | Activity https://pulmonaryfibrosisnews.com/forums/members/gmanol/activity/ Activity feed for George Manolakis. Sat, 18 Apr 2026 07:31:31 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1de167677da98e1075835ef46c067f53 George Manolakis replied to the discussion Toolkit for the Newly Diagnosed in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/toolkit-for-the-newly-diagnosed/#post-32940 Tue, 23 Aug 2022 22:36:09 -0500 Reply to Toolkit for the Newly Diagnosed

My biggest regret was not starting either Esbriet or Ofev when I was first diagnosed. I read so much about side effects that I told myself the side effects outweigh the benefits. Boy was I wrong.
5 years after diagnosis I started taking Esbriet with zero side effects so I would strongly recommend starting drugs ASAP and ,if side effects… Read more

]]> 3a9e42b3a987f799cb0a4572bbddc3ea George Manolakis replied to the discussion Esbriet - Insurance approval in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/esbriet-insurance-approval/#post-31469 Tue, 22 Mar 2022 20:40:03 -0500 Reply to Esbriet - Insurance approval

I was prescribed Esbriet in September and it took until December to get approved. I believe two factors caused the problem. I wanted Ofev because of less pills and 2X per day instead of 3X per day taking pills. My carrier preferred Esbriet as the starting drug for whatever reason. Second was the problem understanding the requirements of… Read more

]]> 8759faacc18c1bf76d975a357f52ce0f George Manolakis replied to the discussion Sudden weight loss in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/sudden-weight-loss/#post-31038 Sat, 12 Feb 2022 16:30:17 -0600 Reply to Sudden weight loss

Random thoughts having lived with IPF for 5 years.

Background. I was diagnosed with IPF in 2017 at age 83 with relatively stable PFT,s and CT scans thru mid 2021. Started rehab September 2021 going from the attitude of how can I increase resistance level of each exercise until in January 2022 where I cannot do 1 mph on treadmill for 2… Read more

]]> 9ae24f0b2e31645e4a034993221eb315 George Manolakis posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/31565/#acomment-31576 Sat, 12 Feb 2022 14:41:29 -0600 Dear Cecil,
Sorry to hear about your rheumatologist experience. Too many doctor forgot about their “Do no harm…….” pledge. I appreciate your sending the article re the statins. Never new that.
Hope you continue to experience a complete lack of side effect from Esbriet as I have. Good luck in the future.
Regards, George

In reply to - George Manolakis posted an update @cecilzlotnick . I would like to add my voice to you and others skeptical to start Ofev or Esbriet altho you have started. I was diagnosed with IPF in 2017 when I was 83. I […] ]]> 20b6f067636f4689aad66e0274acee04 George Manolakis posted an update: @cecilzlotnick . I would like to add my voice to you […] https://pulmonaryfibrosisnews.com/forums/activity/p/31565/ Thu, 10 Feb 2022 21:22:18 -0600 @cecilzlotnick . I would like to add my voice to you and others skeptical to start Ofev or Esbriet altho you have started. I was diagnosed with IPF in 2017 when I was 83. I was skeptical about the potential side effects of these drugs and delayed starting them. My PFT’s and CT scans showed little change until the start of 2021 when PTF’s… Read more

]]> 3 6f23bf209fb3e64d73bcda547944d46c George Manolakis replied to the discussion Inhaler Use for Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/inhaler-use-for-pulmonary-fibrosis/#post-30596 Fri, 10 Dec 2021 18:21:31 -0600 Reply to Inhaler Use for Pulmonary Fibrosis

Charlene,

Thank you for hosting this site. You do a great job and thousands appreciate your effort. I am a constant reader but seldom contributor. I was researching steroid inhalers and came across this thread that I read from beginning to end.

To recap my history, I turn 87 in several days, diagnosed with IPF start of 2017, still have… Read more

]]> f9073942e9291ab2467c9a860a9b532e George Manolakis replied to the discussion David Swain - a brave fight against IPF in the forum In Loving Memory https://pulmonaryfibrosisnews.com/forums/forums/topic/david-swain-a-brave-fight-against-ipf/#post-28873 Tue, 15 Jun 2021 20:57:59 -0500 Reply to David Swain - a brave fight against IPF

My thoughts are with you at this time. We are all family under the veil of this disease.

George Manolakis

]]> 4f889b6fab7114776686cafd6985c013 George Manolakis replied to the discussion An Interview With a Pulmonologist in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/an-interview-with-a-pulmonologist/#post-23542 Thu, 19 Mar 2020 19:44:40 -0500 Reply to An Interview With a Pulmonologist

Mark,

Thank you for an excellent interview. For the first time I have a logical explanation of how IPF develops. It took slightly more than a year to diagnose the cause for shortness of breath by my cardiologist and PCP altho I was diagnosed with AFIB and had ablation during that period. Fortunately, my scarring appears more in the center of… Read more

]]> 10091a153e7eb47cc540e6e49e88147e George Manolakis became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/17426/ Thu, 23 Jan 2020 22:32:44 -0600 1