Cecil Zlotnick

Hi Donna,

I was diagnosed with an Interstitial lung disease in November 2021.

In February this year I started Esbriet but because I couldn’t tolerate the full dosage of 801mg, 3 times per day, I settled on 2/3 of the dosage, which is what my pulmonologist said was good enough.

Unfortunately, last month I experienced a major deterioration of my…[Read more]

Hi Wesley,

Thank you for the zoom recording.

Unfortunately, I found it of little help in the prevention or cure of scarring of the lungs for an IPF sufferer.  There was very little discussed on the lungs and although the presenter mentioned             2 exercises, they weren’t detailed enough and very little time was spent on them in the…[Read more]

Hi Wesley,

I am very interested in the link for the healing scar tissue recording.

Please send the link.

Cecil Zlotnick

I was diagnosed with an interstitial lung disease in November 2021.  Then I had 65% lung capacity and not on oxygen or Prednisone.

I August this year, my oxygen saturation took a dive, and I ended up in hospital on intravenous cortisone and an antibiotic, blood tests revealing a virus and a bacterial infection.  After 6 days, I was much better a…[Read more]

Hi All,

I was diagnosed with ILD in November last year.  A CT scan revealed that 35% of my lungs were scarred.  At the time I was not on oxygen and led a normal life.  In February, my pulmonologist started me on Esbriet.  Because of the side effects I could only tolerate 2 X 267mg 3 times a day instead of the recommended 3 X 267mg 3 times a day…[Read more]

Hi all,

I have IPF and am taking Esbriet, 801mg per day (3 X 267mg).

I have recently been interested in taking Serrapeptase as well as the Esbriet as some say the Serrapeptase can reverse scarring in the lungs.

Can it be taken while taking Esbriet or will it counter the effectiveness of the Esbriet?

Any advice would be welcome.

Cecil

Hi all on this forum.

I am 74 years old and am from Johannesburg, South Africa.  I was diagnosed with an interstitial lung disease in November last year after a CT scan following a bout of pneumonia, which affected my breathing.  My pulmonologist told me that my lungs had 65% capacity owing to the scarring or fibrosis.  At the time, I was not on…[Read more]

Hi All,

Since my last thread on 1st December (above), which was after an exacerbation in August, I started having difficulty breathing and had to use oxygen all the time – about 2l/min I went for a CT scan and saw my pulmonologist the next day.

I was shocked to hear that although my lung function was similar to a month before, my CT scan should…[Read more]

I am 74 years old.  I was diagnosed with an interstitial lung disease a year ago.  Approximately 30 to 35% scarring.  I’ve been on Esbriet since February.  My pulmonologist told me that the full dosage is 3 capsules, 3 times a day but if I could not tolerate the side effects, it would be acceptable to go with as much as I could tolerate.  Well…[Read more]

Hi everyone concerned with IPF or ILD.

I am 74 years old and am from Johannesburg South Africa.

My story started when I was diagnosed with an interstitial lung disease in November last year after a bout of pneumonia and a CT scan.

I have 65 -70% available lung capacity with the remainder being scarred or having fibrosis.  I do not have…[Read more]

Hi

Thank you Norman

Hi Malcolm,

I was diagnosed with PF in November.

Since February, I started taking Esbriet – trying to build up to 3 X 267mg (801mg) three times a day.

I could not tolerate it because of the side effects of dizziness, nausea and headaches.  I have my own engineering business and with this high dosage (equivalent to 3 X 801mg per day), I just…[Read more]

Hi All on the forum.  I’m interested to know the type of cough associated with IPF.  I have a cough with phlegm but think it is from reflux.  It occurs mainly when I’m lying flat on my back in bed at night.  I sleep on my side – can’t sleep on my back.  I’m on Esbriet and don’t know whether it causes reflux resulting in the coughing, or whet…[Read more]

Hi Doug,

Thank you very much for the information.  My pulmonologist tested me 3 months ago and found that my oxygen  was at 94%.  I had not yet started the Esbriet.  I’m due for a 3 monthly checkup next week and expect to have a full lung function test.

Hi all forum members.

I am from South Africa.  I am a metallurgical engineer and have owned a steel heat treatment business in Johannesburg for the past 41 years.  We use certain gases and chemical in our plant.

About 3 or 4 years ago, as a result of an accident during which a glass flow tube broke, I ingested a sudden high pressure blast of p…[Read more]

Hi to all on the forum,

I was diagnosed with PF (interstitial lung disease in November last year.  Results from my CT scan indicated that I have approximately 70% lung function.  I have been on Esbriet since January this year.  I’m taking 2 X 267 mg 3 times a day.  I tried 3 X 267mg 3 times a day but could not tolerate the side effects viz. diz…[Read more]