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Cecil Zlotnick replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 2 months, 2 weeks ago
Hi Donna,
I was diagnosed with an Interstitial lung disease in November 2021.
In February this year I started Esbriet but because I couldn’t tolerate the full dosage of 801mg, 3 times per day, I settled on 2/3 of the dosage, which is what my pulmonologist said was good enough.
Unfortunately, last month I experienced a major deterioration of my…[Read more]
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Cecil Zlotnick replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago
Hi Wesley,
Thank you for the zoom recording.
Unfortunately, I found it of little help in the prevention or cure of scarring of the lungs for an IPF sufferer. There was very little discussed on the lungs and although the presenter mentioned 2 exercises, they weren’t detailed enough and very little time was spent on them in the…[Read more]
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Cecil Zlotnick replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago
Hi Wesley,
I am very interested in the link for the healing scar tissue recording.
Please send the link.
Cecil Zlotnick
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Cecil Zlotnick replied to the topic Prednisone in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago
I was diagnosed with an interstitial lung disease in November 2021. Then I had 65% lung capacity and not on oxygen or Prednisone.
I August this year, my oxygen saturation took a dive, and I ended up in hospital on intravenous cortisone and an antibiotic, blood tests revealing a virus and a bacterial infection. After 6 days, I was much better a…[Read more]
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Cecil Zlotnick replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago
Hi All,
I was diagnosed with ILD in November last year. A CT scan revealed that 35% of my lungs were scarred. At the time I was not on oxygen and led a normal life. In February, my pulmonologist started me on Esbriet. Because of the side effects I could only tolerate 2 X 267mg 3 times a day instead of the recommended 3 X 267mg 3 times a day…[Read more]
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Cecil Zlotnick replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 2 months, 4 weeks ago
Hi all,
I have IPF and am taking Esbriet, 801mg per day (3 X 267mg).
I have recently been interested in taking Serrapeptase as well as the Esbriet as some say the Serrapeptase can reverse scarring in the lungs.
Can it be taken while taking Esbriet or will it counter the effectiveness of the Esbriet?
Any advice would be welcome.
Cecil
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Cecil Zlotnick replied to the topic Starting Esbriet in the forum Esbriet (Pirfenidone) 3 months ago
Hi all on this forum.
I am 74 years old and am from Johannesburg, South Africa. I was diagnosed with an interstitial lung disease in November last year after a CT scan following a bout of pneumonia, which affected my breathing. My pulmonologist told me that my lungs had 65% capacity owing to the scarring or fibrosis. At the time, I was not on…[Read more]
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Cecil Zlotnick started the topic Taking Esbriet and Ofev at the same time. in the forum Esbriet (Pirfenidone) 3 months, 1 week ago
Is this possible? Will it stop the progression of fibrosis? Is it recommended? Has anyone done so?
Are the side effects tolerable?
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Cecil Zlotnick replied to the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 3 months, 1 week ago
Hi All,
Since my last thread on 1st December (above), which was after an exacerbation in August, I started having difficulty breathing and had to use oxygen all the time – about 2l/min I went for a CT scan and saw my pulmonologist the next day.
I was shocked to hear that although my lung function was similar to a month before, my CT scan should…[Read more]
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Cecil Zlotnick replied to the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 3 months, 3 weeks ago
I am 74 years old. I was diagnosed with an interstitial lung disease a year ago. Approximately 30 to 35% scarring. I’ve been on Esbriet since February. My pulmonologist told me that the full dosage is 3 capsules, 3 times a day but if I could not tolerate the side effects, it would be acceptable to go with as much as I could tolerate. Well…[Read more]
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Cecil Zlotnick replied to the topic how long can you take Esbriet? in the forum Esbriet (Pirfenidone) 4 months, 3 weeks ago
Hi everyone concerned with IPF or ILD.
I am 74 years old and am from Johannesburg South Africa.
My story started when I was diagnosed with an interstitial lung disease in November last year after a bout of pneumonia and a CT scan.
I have 65 -70% available lung capacity with the remainder being scarred or having fibrosis. I do not have…[Read more]
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Cecil Zlotnick replied to the topic Patient Experiences with COVID-19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 6 months, 1 week ago
Hi
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Cecil Zlotnick replied to the topic Optimum Esbriet dosage in the forum Esbriet (Pirfenidone) 8 months ago
Thank you Norman
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Cecil Zlotnick started the topic Optimum Esbriet dosage in the forum Esbriet (Pirfenidone) 8 months ago
Recommended dosage from some pulmonologists is 801mg, 3 times a day.
I cannot tolerate the side effects, particularly dizziness, nausea and headaches at this high dosage but at 534mg taken 3 times a day, I tolerate the drug very well.
My question is whether the lower dosage is adequate to still slow the progression of PF sufficiently.
Any…[Read more]
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Cecil Zlotnick replied to the topic Esbriet reduced dose? in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 1 week ago
Hi Malcolm,
I was diagnosed with PF in November.
Since February, I started taking Esbriet – trying to build up to 3 X 267mg (801mg) three times a day.
I could not tolerate it because of the side effects of dizziness, nausea and headaches. I have my own engineering business and with this high dosage (equivalent to 3 X 801mg per day), I just…[Read more]
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Cecil Zlotnick started the topic Esbriet and coughing in the forum Esbriet (Pirfenidone) 8 months, 4 weeks ago
Hi All on the forum. I’m interested to know the type of cough associated with IPF. I have a cough with phlegm but think it is from reflux. It occurs mainly when I’m lying flat on my back in bed at night. I sleep on my side – can’t sleep on my back. I’m on Esbriet and don’t know whether it causes reflux resulting in the coughing, or whe…[Read more]
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Cecil Zlotnick replied to the topic Sleeping with head elevated in the forum Diagnosis Information and General Questions 8 months, 4 weeks ago
Hi All on the forum. I’m interested to know the type of cough associated with IPF. I have a cough with phlegm but think it is from reflux. It occurs mainly when I’m lying flat on my back in bed at night. I sleep on my side – can’t sleep on my back. I’m on Esbriet and don’t know whether it causes reflux resulting in the coughing, or whet…[Read more]
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Cecil Zlotnick replied to the topic BEFORE YOU START ON OXYGEN in the forum Join the Discussion: Welcome to all PF/IPF Patients 10 months, 4 weeks ago
Hi Doug,
Thank you very much for the information. My pulmonologist tested me 3 months ago and found that my oxygen was at 94%. I had not yet started the Esbriet. I’m due for a 3 monthly checkup next week and expect to have a full lung function test.
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Cecil Zlotnick replied to the topic Occupation-Related IPF in the forum Employment & Pulmonary Fibrosis 11 months ago
Hi all forum members.
I am from South Africa. I am a metallurgical engineer and have owned a steel heat treatment business in Johannesburg for the past 41 years. We use certain gases and chemical in our plant.
About 3 or 4 years ago, as a result of an accident during which a glass flow tube broke, I ingested a sudden high pressure blast of p…[Read more]
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Cecil Zlotnick replied to the topic BEFORE YOU START ON OXYGEN in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months ago
Hi to all on the forum,
I was diagnosed with PF (interstitial lung disease in November last year. Results from my CT scan indicated that I have approximately 70% lung function. I have been on Esbriet since January this year. I’m taking 2 X 267 mg 3 times a day. I tried 3 X 267mg 3 times a day but could not tolerate the side effects viz. diz…[Read more]
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