gumbo
@Mike
•
Joined Sep 2022 •
Active a year ago
Biography
| Name | Mike |
| Nickname | gumbo |
| Year of Birth | 1948 |
| Gender | Male |
| Location | Massachusetts |
| Relationship | Patient |
| Short Bio | I’ve been recently diagnosed (5 Months) with IPF. I’m 74, retired male, living alone, and can feel my lung function decreasing rapidly. I’m taking Oxygen, now up to 3-4 LPH. My sister died from this disease 2 years ago while waiting for a lung transplant. |
| Type of Diagnosis | familial/genetic PF |
| Treatment / Medical Facility | Brigham and Women's in Boston. No treatment. I've had to lobby for oxygen. I've also requested pallative care, as I don't foresee survival for much longer. |
| Current medication regimen | Ofev |
| Lung transplantation status | ineligible |
| Supplemental Oxygen | yes |
| Are you currently taking an anti-fibrotic medication? | yes |
| How did you find us? | Other |
| How long have you or the person that you are caring for had PF? | 5 months |
| Privacy Policy and Terms of Use | I agree |