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Eleanor Heppleston replied to the topic Help for High Oxygen User Nasal Pain in the forum Using Our Forums 1 year, 10 months ago
My husband was having the same problem. His O2 is only at 5l with humidification but he had crusting that was painful. The pharmacist recommended Secaris. It’s a lubricating nasal gel suitable for use with oxygen according to him. No petroleum listed as an ingredient. My husband says it helped.
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Eleanor Heppleston replied to the topic Resources for PF Caregivers in the forum Caregivers and Spouses 1 year, 11 months ago
Thanks for posting these resources. I will be taking a look at them. I am currently the caregiver for my husband with IPF. I have been using the private Messenger off Facebook to send 1 message to all family about his condition. It works well as everyone gets the same info and answer to questions. There is no way I’d have time to talk or send info…[Read more]
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Eleanor Heppleston replied to the topic Flying with IPF in the forum Diagnosis Information and General Questions 3 years, 10 months ago
Thank you David for the website. I have bookmarked it for future reference. We have chosen to drive from Ontario to Florida rather than fly, (we both do like driving), but this will be great to use for future reference.
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Eleanor Heppleston replied to the topic Flying with IPF in the forum Diagnosis Information and General Questions 3 years, 10 months ago
We are taking a needed vacation and need to either fly or drive. My husband has IPF and his respirologist sent him for a ‘fit to fly’ test at the pulmonary lab. They tested his oxygen level at various altitudes. His results were borderline. Rather than dealing with taking oxygen, my husband is not on any as of now, he wants to drive. So we are…[Read more]
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Eleanor Heppleston replied to the topic Insurance Availability for Patients with PF. in the forum Diagnosis Information and General Questions 3 years, 10 months ago
Hi. We have just looked into travel insurance for my husband with IPF. He was covered at a higher rate, but were told he would not be covered if he was on oxygen. They said it is very difficult to find anyone who will cover a person on oxygen, as they have had calls from people who were searching.
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Eleanor Heppleston posted a new activity comment 4 years ago
Thanks Charlene. I am looking forward to learning more about IPF for my husband with the diagnosis, and for me as his care giver.
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Eleanor Heppleston became a registered member 4 years ago
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Thanks for joining the PF forums Eleanor. Welcome!
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Thanks Charlene. I am looking forward to learning more about IPF for my husband with the diagnosis, and for me as his care giver.
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Hi @hepp23, thanks for sharing a bit more of what brought you to the forums, although so sorry to hear of your husband’s diagnosis! Feel free to write us any time, this group is incredibly welcoming and supportive, and filled with both patients and caregivers. I look forward to getting you know you a bit more through the forums and welcome…[Read more]
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Hi @hepp23, thanks for sharing a bit more of what brought you to the forums, although so sorry to hear of your husband’s diagnosis! Feel free to write us any time, this group is incredibly welcoming and supportive, and filled with both patients and caregivers. I look forward to getting you know you a bit more through the forums and welcome…[Read more]