Biography

Name

Joan Jones

Nickname

joan-jones

Year of Birth

1962

Gender

Female

Location

Lake Katrine

Relationship

Caregiver

Short Bio

Caring for my husband who was diagnosed in March 2019 and is now end stage of disease

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Was evaluated at NY PRESBYTERIAN ILD clinic and transplant

Current medication regimen

None but ofev

Lung transplantation status

eligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Have no advice

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

20 months

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