john sliwinski
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john sliwinski replied to the discussion Gabapentin usage in the forum PF Communities 10 months ago
For PattyO
I take gabapentin for cough but I think I can’t tolerate the side effects anymore. I am getting very impatient with everything and sometimes it is like the nails on a chalkboard. I think I need to lower the dosage, but afraid the cough will increase. However, I will be checking this out with my pulmonologist for a step in the…
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john sliwinski started the discussion Gabapentin usage in the forum PF Communities 10 months ago
Has anyone been on a hi dosage of Gabapentin(600mg – three times daily)
and then decided to lower their dosage or stop using it altogether? What
were, if any, side effects? I am currently on 1800 mg daily and want to
lower or even not use it anymore. I know you have to gradually taper it
down. Please let me know. -
john sliwinski replied to the discussion Healing scar tissue zoom call recording in the forum Welcome Lounge 2 years ago
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john sliwinski replied to the discussion Healing scar tissue zoom call recording in the forum Welcome Lounge 2 years ago
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john sliwinski replied to the discussion Taking time off from esbriet in the forum Esbriet (Pirfenidone) 3 years ago
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john sliwinski replied to the discussion Life span in the forum Diagnosis Information and General Questions 3 years ago
My local pulmonologist stated my life span would be 2-5 years. However after getting a second opinion at a Center of Excellence (Univ. of Pa.) and after they doctor there reviewed my lung biopsy I was told I had over 10 years plus. So far it has been 5 years and still on Esbriet and stable. One thing to keep in mind sitting or lying around… Read more
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john sliwinski replied to the discussion Taking time off from esbriet in the forum Esbriet (Pirfenidone) 4 years ago
Steve listen to everyone and do consult your pulmonologist prior to stopping your medication. Playing doctor on your own is not the answer. Don’t do more harm than good.
I have been on Esbriet for almost 4 years and luckily for me did not have any side effects. I am stable so far and hope to remain that way.
Keep us posted.
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john sliwinski replied to the discussion GLPG1690 Clinical Trial in the forum Clinical Trials 4 years ago
I was selected for the Galapegos trial in Philadelphia and on my first visit they did a cat scan of my lungs and put me through lung function tests. After they got the cat scan results I was disqualified since my lungs were in not that bad of shape for my age (72 years old). I was totally disappointed that I could no longer participate but one… Read more
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john sliwinski replied to the discussion I Did Everything Right, So Why Did I End Up With Pulmonary Fibrosis? in the forum Flash Briefings & Podcasts 4 years ago
I Did Everything Right, So Why Did I End Up With Pulmonary Fibrosis?
Who knows like others have said. I worked in a steel mill for a few summers while in college, I smoked and stopped. My cause was GERD. Acid reflux in the night and all I thought it was just heart burn and took an antacid. My local pulmonologist said I had 2-5 years left but on second opinion at Penn in Philly I was told 10+ years. I am 72… Read more
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john sliwinski replied to the discussion Utilizing Technology While Living with Pulmonary Fibrosis in the forum Flash Briefings & Podcasts 5 years ago
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