Biography

Name

Jan
Nickname

JSR
Last Name

Rosin
Year of Birth

01/22/1952
Gender

Female
Location

Houston, Texas
Relationship

Patient
Short Bio

I am 72 years old and was diagnosed with ILD in January 2023.
Type of Diagnosis

familial/genetic PF
Treatment / Medical Facility

Houston Methodist Lung Center
Current medication regimen

Cellcept
Lung transplantation status

considering later
Supplemental Oxygen

yes
Best advice for PF symptom management

Use smart watch technology.  I was first aware of problems because of my smart watch.  Take as much pulmonology therapy as you can get.  It really helps.

 
Are you currently taking an anti-fibrotic medication?

yes
If yes, which anti-fibrotic medication are you on?

Other
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

One year
Privacy Policy and Terms of Use

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