Pulmonary Fibrosis News Forums | Yvonne | Activity https://pulmonaryfibrosisnews.com/forums/members/juzretired/activity/ Activity feed for Yvonne. Sun, 05 Apr 2026 17:29:55 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 bbe90c303494939123a6d6a35d0d5c85 Yvonne replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-32957 Mon, 29 Aug 2022 13:47:44 -0500 Reply to Split Ofev doseages

Hello Millie

Not an easy platform for me to start using but here goes a 2nd time.  I have been on Ofev since Feb 2020 and have had issues with nausea, vomiting only 3 times thankfully, but diarrhea that is persistent daily if not taking prescription Imodium to stop or slow it down.  Life for me on Ofev has become like a tough game of chess w/… Read more

]]> 01c0acc0286986da06fce66ef203e30c Yvonne replied to the discussion Side effects of OFEV in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/side-effects-of-ofev/#post-23705 Fri, 27 Mar 2020 00:49:51 -0500 Reply to Side effects of OFEV

Hello Jane

I read that Peppermint Oil helps with nausea, and I found gum at Whole Foods w/ it.  Ginger tea, Chamomile tea, and sipping on ginger ale can help.  When my 1st wave of strong nausea hit me, I chewed that gum and drank ginger ale and it went away fairly quickly, thankfully!  There’s anti-nausea meds your doctor could set you up… Read more

]]> 51aea16f93d12c1933ac0ca20652332f Yvonne replied to the discussion Side effects of OFEV in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/side-effects-of-ofev/#post-23670 Wed, 25 Mar 2020 11:07:23 -0500 Reply to Side effects of OFEV

I just wanted to share about my side effects after only being on OFEV for just 3 weeks. I had a few of the typical expected things occur, my 1st dose had me momentarily feeling prickling tingles on both arms in the same spot by my elbows, but that passed by nearly as quickly as it occurred.

The shocking, but rare thing come to find out, was… Read more

]]> 55296527aa153076ec229a9fa9b398b3 Yvonne posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17558/#acomment-18914 Fri, 20 Mar 2020 15:47:52 -0500 Thank you very much Bill. I’ve not been on this site for quite awhile and just now saw your message, and it reminded me that I can do everything I can to fight this disease BUT, ultimately God is control of everything, he’s not forsaken me, and He is aware of everything I’m facing!

After just 3 weeks on OFEV, it caused Hypothyroidism for me… Read more

In reply to - Yvonne posted an update @bill-mckee Hello Bill I was just diagnosed with genetic tests confirming the reason behind my Pulmonary Fibrosis. I chose OFEV over Esbriet due to having 2 pills a day to survive […] ]]> 1de4f009d24ceba7f034ba71bf8e1c53 Yvonne posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/16512/#acomment-18203 Thu, 20 Feb 2020 18:55:46 -0600 Hello Donna
My pulmonologist wanted to do a biopsy, but my husband suggested waiting on numerous testing results to come back & the genetic testing came back conclusive for the cause of my ILD, therefore a biopsy or bronchoscopy was not needed. Just a thought.

In reply to - donna posted an update in the group Research and Development I wish I knew, thought I might find some data here recently diagnosed ild. they are pushing for a lung biospy, scares the daylights right out of […] ]]> d42dba5c690994218b6739ab1ea1ed1b Yvonne joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/18202/ Thu, 20 Feb 2020 18:51:25 -0600 0 2b5d9908981066dbf3d81bcc902a2622 Yvonne replied to the discussion Prognosis Predictions for IPF Patients in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/prognosis-predictions-for-ipf-patients/#post-22852 Thu, 06 Feb 2020 04:49:58 -0600 Reply to Prognosis Predictions for IPF Patients

Hi Charlene

Yes, I am a part of a patient registry by way of the University of California Davis Medical Center because I signed up to be a part of their research.  I figured if by doing so that I could help in any way, it was a good idea.

My genetic testing results came back that my ILD is hereditary and so I’m being put on OFEV.  No one has… Read more

]]> a128a5be6f3948a9bcddb4a3c68f596b Yvonne replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-22773 Thu, 30 Jan 2020 12:49:21 -0600 Reply to Starting Ofev

I’m new to this site and have info regarding the topic of OpenDoors patient support program that my pulmonary doctor had me sign up for.  Maybe this will help someone.  My best to us all who are struggling with this terribly unfortunate medical condition.  Keep up the good fight!
https://www.ofev.com/support/open-doors

]]> f4c961304122cf6dc382e736015b4e4f Yvonne posted an update: @bill-mckee Hello Bill I was just diagnosed with […] https://pulmonaryfibrosisnews.com/forums/activity/p/17558/ Tue, 28 Jan 2020 18:14:19 -0600 @bill-mckee Hello Bill
I was just diagnosed with genetic tests confirming the reason behind my Pulmonary Fibrosis. I chose OFEV over Esbriet due to having 2 pills a day to survive through overt having 9 pills to take. AND, the sun complications would be bad for me since I travel to Mexico.

How are you doing, still handling the meds… Read more

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