

katc
@KatC
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Joined May 2024 •
Active a day ago
Biography
Name | Katherine |
Nickname | KatC |
Last Name | Cope |
Year of Birth | 1950 |
Gender | Female |
Location | Indiana U.S. |
Relationship | Patient |
Short Bio | SOB for many years before diagnosis of chronic Hypersensitivity Pneumonitis with fibrosis. No identified cause. Using 2-4 l oxygen past 6 years, taking Cellcept most of that time. Used Ofev for 18 months before side effects were too severe. Pulmonary is relatively stable. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | University of Chicago |
Lung transplantation status | ineligible |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Keep exercising |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | |
How long have you or the person that you are caring for had PF? | 6 years since diagnosis- actual time unknown |
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