Keith Emery
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Keith Emery replied to the discussion Ofev – diarrhea after some time? in the forum Welcome Lounge 2 months ago
Ofev - diarrhea after some time?
After about 18 months of taking Ofev, I have suddenly developed what I call ‘NINJA Diaherra Attacks’, often triggered by the need to pass urine. Fortunately, but not always I am in the bathroom at the time. My diet is good with lots of protein and always some fibre. However, it still happens and often takes me by surprise as I do not…
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Keith Emery replied to the discussion Ofev and abdominal pain in the forum Welcome Lounge 5 months ago
Hi,
It’s strange that you raise this as an Issue as I’m suffering from abdominal pain just lately, but never considered OFEV as the possible cause. I have been referred by my GP to a laxative as he suggests that my pain could be constipation.
I have taken his recommended medication abdominal it provides relief for some time, but the pain…
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Keith Emery replied to the discussion Air Physio in the forum Welcome Lounge a year ago
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Keith Emery replied to the discussion Post covid PF, trying to adjust in the forum Welcome Lounge a year ago
Post covid PF, trying to adjust
Hi, I feel for you, while I already had mild IPF in June 2021 while on holiday in Portugal, I contracted COVID-19 on day two. I was very ill and my breathing was badly affected, I literally couldn’t walk ten yards without having to stop and rest. Once I returned home to Scotland my breathing became much worse and eventually, I collapsed and…
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Keith Emery replied to the discussion OFEV Side Effect reduced! in the forum PF Communities a year ago
Great to hear of all these remedies to help with the side effects of OFEV. I too have suffered, mainly with nausia and vomitting, but from time to time diarrhea also, frequently both together on the same day. I have discovered that a reasonably substantial breakfast helps me, namely a plate of instant noodles before my pills and ‘hey presto’…
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Keith Emery replied to the discussion Is a low dose CT any use? in the forum Welcome Lounge a year ago
Yes Gavin, I believe it is. I have IPF which never really bothered me greatly and I was fit and active at 74 years of age. Whilst on holiday in 2022, I contacted Covid 19 which ravaged my lungs and disabiletated me to the degree that I was hospitalised for a month. After a slow recovery of about 6 months my Consultant organised a CT Scan for… Read more
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Keith Emery replied to the discussion Questions about Ofev in the forum Using Our Forums a year ago
Hi Maria, I too started Ofev in January 2023, now into week 10. I have nausea and vomiting together with Diarrhoea several times each week and lots of wind/gas. My Consultant Pharmacist assures me that through time this will pass. I am determined to stay with the drug as its benefits outweigh the drawbacks i.e. slowing of the progress of… Read more
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Keith Emery replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) a year ago
Hello from Scotland,
I was diagnosed with IPF in September 2015 after a bout of pneumonia. All was well during the ensuing years, until our holiday in the Algarve, Portugal, in June 2022. I contracted Covid 19 over there and became seriously ill and hospitalised for a month, as the Covid 19 had ravaged my pulmonary fibrosis and doubled its… Read more -
Keith Emery replied to the discussion Covid causing pulmonary fibrosis in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis a year ago
Covid causing pulmonary fibrosis
I was diagnosed with IPF in October 2015. Fortunately, it was progressing slowly and my breathing range was just a little below normal. However, in June 2022 we went on our long-awaited holiday (due to Covid 19 restrictions in previous years) to Portugal. Within two days after arrival, we were both struck down with Covid 19. My wife… Read more
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Keith Emery replied to the discussion Synovitis of the knee in the forum Welcome Lounge 2 years ago
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