My happy place is being with my wife, Jennifer, at our favourite hotel Vasco Da Gama in Monte Gordo, Algarve, Portugal for our annual holiday. I am at my happy place just now!

Keith

I have idiopathic pulmonary fibrosis. I too have ‘post nasal drip’ which I understand is a side effect from taking Ofev. I also have ‘silent GORD/GERD’ which can also be a side effect of Ofev, I believe.

Happy Days!

After about 18 months of taking Ofev, I have suddenly developed what I call ‘NINJA Diaherra Attacks’, often triggered by the need to pass urine. Fortunately, but not always I am in the bathroom at the time. My diet is good with lots of protein and always some fibre. However, it still happens and often takes me by surprise as I do not…

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Hi,

It’s strange that you raise this as an Issue as I’m suffering from abdominal pain just lately, but never considered OFEV as the possible cause. I have been referred by my GP to a laxative as he suggests that my pain could be constipation.

I have taken his recommended medication abdominal it provides relief for some time, but the pain…

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Really? Have you had medical advice about this, please?

Hi, I feel for you, while I already had mild IPF in June 2021 while on holiday in Portugal, I contracted COVID-19 on day two. I was very ill and my breathing was badly affected, I literally couldn’t walk ten yards without having to stop and rest. Once I returned home to Scotland my breathing became much worse and eventually, I collapsed and…

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Great to hear of all these remedies to help with the side effects of OFEV. I too have suffered, mainly with nausia and vomitting, but from time to time diarrhea also, frequently both together on the same day. I have discovered that a reasonably substantial breakfast helps me, namely a plate of instant noodles before my pills and ‘hey presto’…

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Yes Gavin, I believe it is. I have IPF which never really bothered me greatly and I was fit and active at 74 years of age. Whilst on holiday in 2022, I contacted Covid 19 which ravaged my lungs and disabiletated me to the degree that I was hospitalised for a month. After a slow recovery of about 6 months my Consultant organised a CT Scan for… Read more

Hi Maria, I too started Ofev in January 2023, now into week 10. I have nausea and vomiting together with Diarrhoea several times each week and lots of wind/gas. My Consultant Pharmacist assures me that through time this will pass. I am determined to stay with the drug as its benefits outweigh the drawbacks i.e. slowing of the progress of… Read more

Hello from Scotland,
I was diagnosed with IPF in September 2015 after a bout of pneumonia. All was well during the ensuing years, until our holiday in the Algarve, Portugal, in June 2022. I contracted Covid 19 over there and became seriously ill and hospitalised for a month, as the Covid 19 had ravaged my pulmonary fibrosis and doubled its… Read more

I was diagnosed with IPF in October 2015. Fortunately, it was progressing slowly and my breathing range was just a little below normal. However, in June 2022 we went on our long-awaited holiday (due to Covid 19 restrictions in previous years) to Portugal. Within two days after arrival, we were both struck down with Covid 19. My wife… Read more

I have severe knee pain at night when in bed and occasionally during the day. I was diagnosed with IPF in September 2015. Covid infection has caused the scarring to double in size so I am now being treated with Ofev – just started

I was diagnosed in September 2015. I am 75 years young and still going strong, although I caught covid in June 2022 which added to the scaring significantly. I have now been approved for drug treatment to slow the progression down and apparently extend my life by up to a further three years.

I do get highly breathless when undertaking… Read more

Charlene, I agree with you entirely. Rest does not help with my IPF breathing problem. Only if I become breathless through activity and need a few moments to recover, do I see rest as helping. I try to push myself when walking so that my lungs are exercised, although I probably can only walk 100 yards before having to stop to catch my… Read more