Why the Word ‘Rest’ Triggers Me
The simple task of breathing should never be hard work. Unfortunately, those of us living with idiopathic pulmonary fibrosis (IPF) know that it can be hard work, and many of us wish that others would never take their respiratory health for granted.
For those who have never had a respiratory condition and truly don’t know how it feels to be short of breath or to struggle to breathe, they often think rest is what we need. I always hear people say to me, “Charlene, you need to rest more to feel better” or “why don’t you have a rest” and I find this word triggering. While I know they are well-intended, rest does not fix the symptoms we struggle with when living with IPF. I always say to people that having this disease is not like having a broken leg, migraine or something else; rest doesn’t help because no matter what we’re doing, our lungs need to be working.
Does anyone else feel triggered by others telling you to rest?
If so, how do you manage it? I’m curious to hear from you!
Stay tuned: I think I’m brewing up a column idea focused on this and will share it when its complete.
Log in to reply.