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Margaret

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@msherbert

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    Margaret replied to the topic Bridging the Emotional Gap Between Patients and Doctors in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 1 week ago

    I was sent to the ILD clinic at the hospital by my radiation oncologist after my post radiotherapy pneumonitis showed up on a chest CT as pulmonary fibrosis.  It was a bit of a shock having to turn my mind from worrying about stage 2 breast cancer (with an 85% five year survival rate) to something worse.  My pulmonologist answered my questions a…[Read more]

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    Margaret replied to the topic Biopsy… yes or no? in the forum Upcoming Medical Appointments: Q&As 2 months, 4 weeks ago

    I have been recently diagnosed with radiation induced pulmonary fibrosis after breast cancer treatment (on HRCT) which is a rare side effect. My pulmonologist was not very surprised as I had an upper GI bleed and was diagnosed with Barrett’s esophagus four years ago. I have never had any symptoms of heartburn, but started taking omeprazole then.  …[Read more]

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    Margaret posted a new activity comment 4 months, 2 weeks ago

    Thank you for the links.

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    Margaret posted a new activity comment 4 months, 2 weeks ago

    Thanks, Charlene. I don’t have IPF like most people here since my PF is an adverse effect of radiation treatment for breast cancer. Even my pulmonologist who heads the ILD program at a large research hospital doesn’t have much experience with this to go on since most RILI patients he has treated developed PF after radiation for lung cancer. I’m…[Read more]

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      Christie Patient replied 4 months, 2 weeks ago

      Hi Margaret, there are people in the forums who have had a diagnosis similar to yours from radiation. One of our former columnists, Kim Fredrickson, was one. Her columns are still up, and she wrote several books to help other patients go through this process, which you might find helpful given your breast cancer link.

      Here is her column:…[Read more]

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        Margaret replied 4 months, 2 weeks ago

        Thank you for the links.

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    Margaret became a registered member 4 months, 3 weeks ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 months, 2 weeks ago

      Thanks for joining the PF forums Margaret. Welcome!

      • Profile picture of Margaret
        Margaret replied 4 months, 2 weeks ago

        Thanks, Charlene. I don’t have IPF like most people here since my PF is an adverse effect of radiation treatment for breast cancer. Even my pulmonologist who heads the ILD program at a large research hospital doesn’t have much experience with this to go on since most RILI patients he has treated developed PF after radiation for lung cancer. I’m…[Read more]

        • Profile picture of Christie Patient
          Christie Patient replied 4 months, 2 weeks ago

          Hi Margaret, there are people in the forums who have had a diagnosis similar to yours from radiation. One of our former columnists, Kim Fredrickson, was one. Her columns are still up, and she wrote several books to help other patients go through this process, which you might find helpful given your breast cancer link.

          Here is her column:…[Read more]

          • Profile picture of Margaret
            Margaret replied 4 months, 2 weeks ago

            Thank you for the links.

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