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Gordon B Sandmire replied to the topic Welcome 2023! in the forum Living with Pulmonary Fibrosis: 50+ 3 weeks, 6 days ago
Hi Charlene,
The highlight of 2022 for me was celebrating my wife and my 60th wedding anniversary. Our daughter and her husband flew out from Wisconsin to help us celebrate and neighbors threw a wonderful party in or honor. Our son, also from Wisconsin, was here for Christmas which topped of a great year in spite of my IPF and emphysema. -
Gordon B Sandmire replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 2 months, 2 weeks ago
Two thumbs up to James Pillows. Eep it up as long as you can.
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Gordon B Sandmire replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago
Hi Wes, Gordon Sandmire here. I attended your first zoom meeting so thought I would be included in your future mtgs but evidently is not the case. I didn’t even get a notice about time or date. What do I have to do to be included? I found your first session very informative so would like to be included.
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Gordon B Sandmire replied to the topic Why the Word 'Rest' Triggers Me in the forum Living with Pulmonary Fibrosis: 50+ 4 months ago
True!
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Gordon B Sandmire replied to the topic No symptoms in the forum Living with Pulmonary Fibrosis: 50+ 4 months, 1 week ago
Wish drs would stop that 3 to 5 years nonsense. All of us are different. With meds you might live much longer. Perhaps even a cure will be found. No sense being scared with that 3to5 cr**. Does more harm than good. I’m in my 8th year after diagnosis and still able to do most things but much slower. Hang in there.
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Gordon B Sandmire replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
My reply was to Darlene Cochran
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Gordon B Sandmire replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months, 2 weeks ago
I really enjoyed reading your letter. You expressed yourself eloquently in a manner I can’t. You have a wonderful way of getting your thoughts out. Many are the same as mine but much better said. Thank you.
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Gordon B Sandmire replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 4 weeks ago
Good for you, venting is therapeutic and this is a good place to do it. We’re all going thru this so no apologies are needed.
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Gordon B Sandmire replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 7 months, 3 weeks ago
I’m pretty much in agreement with you. I too, at 81, am in the final stages of my life and it hasn’t affected me much mentally. I am grateful to have lived this long and feel more sorry for those much younger having to go thru this horrible disease.
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Gordon B Sandmire replied to the topic Occupation-Related IPF in the forum Employment & Pulmonary Fibrosis 9 months, 1 week ago
I am now 81 and a retired tool and die maker. We had a shop in a thermoset plastics injection mold company.(15 yrs). The fumes from the molds permeated our area daily. I suspect but cannot prove that may have affected my IPF. I was diagnosed with IPF following a collapsed lung in 2014 although I had some breathing problems even before I retired in…[Read more]
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Gordon B Sandmire replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 1 week ago
Exhausting
hopeful(for a cure)
debilitating
acceptance
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Gordon B Sandmire replied to the topic Shameless Plug: New IPF/ILD book in the forum Pulmonary Fibrosis Awareness & Advocacy 10 months, 2 weeks ago
Hi Charlene, I received my copy from Amazon last week and have read about a third of it . So far I have gotten some good tips from it. Mostly on breathing exercises and staying active. I would highly recommend this book to anyone with lung problems not just those of us with IPF.
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Gordon B Sandmire replied to the topic Shameless Plug: New IPF/ILD book in the forum Pulmonary Fibrosis Awareness & Advocacy 11 months, 1 week ago
I have it reserved on Amazon but didn’t know when it would be available til now. March 14 it looks like. I’m sure I will get much info from it.
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Gordon B Sandmire replied to the topic Eating food with pill in the forum Healthy Recipe Sharing 11 months, 1 week ago
I find if I eat half my meal then take my Ofev and finish my meal I get less side effects. (Mostly diarrhea)
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Gordon B Sandmire and
Charlene Marshall are now friends 12 months ago
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Gordon B Sandmire posted a new activity comment 12 months ago
Thank you. I’ve got some good tips already from monitoring some of the forums. That gave me the incentive to join. I’m sure I will get more benefits from my participation.
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Gordon B Sandmire replied to the topic Length of life with IPF in the forum Using Our Forums 12 months ago
I’m new to P F News and live at 3000 ft above sea level. I don’t notice much difference when I am at sea level except for sleeping. I am more comfortable without oxygen then.
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Gordon B Sandmire became a registered member 12 months ago