Karen Moeller

I checked with Indian Pharma Network.  The response is that in India it is called Cyendiv and the cost is $550 for 60 100 mg pills and $100 shipping.  I will check with others and share.  While expensive, a lot cheaper than what I have found so far in the US.  Boehringer Ingleheim was not helpful.

Thank you for your thoughtful response.  I have no problem purchasing the drug from India.  I did google it and there are numerous companies.  If there is anyone reading this who is purchasing from India, can you provide the details?  Thank you.

I am new to IPF and to this forum.  Would like any advice on this issue – my pharmacy approved OFEV, however, the first month wiped out my drug benefit for the year.  I worked with Open Doors, but you have to be near poverty level for them to approve you.  The annual cost of the drug is much more than we make in a year.  I have two alt…[Read more]