likos
Biography
| Name | Nick |
| Nickname | Likos |
| Last Name | Prassoulis |
| Year of Birth | 1953 |
| Gender | Male |
| Location | Toronto Canada |
| Relationship | Patient |
| Short Bio | I am 71 years old and was diagnosed with IPF on June 21, 2024. I have been retired for the last 7 years and love to travel. I ma married with 3 kids and 4 grand kids. I have a home in Greece and spend my summers there. The IPF diagnosis was a result of follow up on lung condition for the last 40 years. The condition is related to asbestos when I was under 12 years old. I have no sysmptoms and carry on normal life. Recent CT scan shows stable codition and the breathing test is normal. Recent visit with the respirologist inidcated that the diagnosis is “challenging” and he will do more follow up with a review board. What I have learned that the IPF diagnosis is difficult and has a high error rate. |
| Type of Diagnosis | IPF |
| Current medication regimen | OFEV 150mg twice daily |
| Lung transplantation status | ineligible |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | I have to sysmptoms so not much to offer at this point. I am taking OFEV and diarrhea seems to be an issue. I didn’t have it fo the first 3 months but I have it now from time to time. |
| Are you currently taking an anti-fibrotic medication? | yes |
| If yes, which anti-fibrotic medication are you on? | Ofev |
| How did you find us? | Other |
| How long have you or the person that you are caring for had PF? | 7 months |
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