Bruce, thank you. This thread shows the confusion out there, especially about Inogen “ratings” and actual lpm ratings. You’ve cleared up a lot of questions I had about air travel, which I have not done since I srarted using POC. Before retirement, i was a more-than-a-million miles traveler.

Sadly, you’ve reinforced those who want me to fly…

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I was prescribed albuterol through my nebulizer and had no relief, but did get headaches. After one severe mucous incident, the doc added saline to the mix. This gave me mucous relief. I now use the combo “as needed” for relief. It’s self-medication but helps with intermittent heavy mucous.

I finally found some relief. After two years, we tried ipratropium bromide and albuterol sulfate (0.5 mg/ 3 mg per 3 ml) mixed in nebulizer with a saline Rx. The albuterol alone has never helped and had given me instant headaches. During a severe mucous episode pulmonologist added the saline. I used it 3 times a day for a month and now use on…

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Glad to see that the problem was with just this unit and not all of its ilk. I’d hate to see our folks afraid to try to function normally because of one device’s problems (but we need to be aware of the possibility).

I had a unique(for me) experience this week. My night-time continuous flow POC kept alarming. It had gone off occasionally…

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My only tip: for my home POC i use a 7’ cannula. For my portable (shopping, etc) i use a 4’ onefor less tangling in tge cart and cooler. I don’t use the home POC except at night, so i don’t need the 25’ of tubing (phew)

Peg, i have used Vitality Medical online fir several years for all my supplies. My wife prefers the Hudson brand cannulas because they are “softer”. I use Salter brand. They are 70-80 cents each when you buy in bulk, so changing frequency is not a big ticket item.

I bought two wheeled POCs from them when insurance did not provide. Vitality…

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Rob, i just started on this week. Long before i was diagnosed with IPF and long before i had symptoms i was given albuterol in the hospital for pneumonia and resisted taking the treatments because of extreme headaches.

Now, 20 years later, i was prescribed this compound to give relief from the effects of a sinus/respiratory infection that…

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Ventless fireplaces don’t produce problems uniquely to IPF patients. Their issues apply to everyone. The controversies are carbon monoxide and humidity. Supposedly the CO is minimal, but, unless you have 100% efficiency (dream world), there will be some CO. This is why some states totally prohibit their use. There is also additional humidity…

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I’ve been on pirfenidone for over a year now, and the first few months were tough. I am also Type 2 diabetic and 14 or so years ago had a quadruple bipass. The GI problems i had with pirfenidone almost made me give up on using it, BUT, I had earlier suspicions that my Synjardy (diabetes) Rx was not a good match for me; BTW, Synjardy is not a…

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Thanks Charlene. I’m old! I’ve lived in East Tennessee, Chicago, East Tennessee, South Florida, Wisconsin, Chicago,and East Tennessee. I’ve worked in 47 states and a dozen countries. Humidity is the biggest problem.

Ask your docabout Teton trials. Maybe youcan join

TK- I “lived with” shortness of breath for several years until my new cardiologist did a CT, recognized ILD and sent me to a caring pulmonologist who dug in. At the same time, my internist put me on Trulicity and changed my kombiglyze to Synjardy (type 2 diabetes). Within 60 days my pulmonologist had me on O2 and pirfenidone. Internist…

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