Biography

Name	Mark
Nickname	lostsurfer
Year of Birth	1955
Gender	Male
Location	Fairview Heights Illinois
Relationship	Patient
Short Bio	Diagnosed around 2015, told probably cause by rheumatoid and arthritis, and /or due to exposure to many carcinogenic chemicals and powders
Type of Diagnosis	IPF
Treatment / Medical Facility	VA facility St Louis, currently on just a monitor phase of treatment
Current medication regimen	Nine
Lung transplantation status	considering later
Supplemental Oxygen	no
Best advice for PF symptom management	Ask lots of questions, read everything you can, and sift through and disregard what seems to have little or no basis in reality. listen and question and work with your medical team change medical teams if not satisfied, in many ways yiu hire them as experts to help you, though they do not have answers to everything, and even if “the books” say a number range is “normal” whose normal?
Are you currently taking an anti-fibrotic medication?	no
How did you find us?	Other
How long have you or the person that you are caring for had PF?	6+ years
Privacy Policy and Terms of Use	I agree

Mark