Here are some organizations that you can contact in regard to financial assistance for Ofev. Hope one of them works out for you.

There are also several organizations that can help those living with pulmonary fibrosis with financial
and insurance issues. You can contact Patient Services Inc. at 1-800-366-7741, the HealthWell
Foundation…

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I have been using Red Light Therapy for about 7 years for other reasons. I’m 74 and was diagnosed with IPF in November 2020. I believe I started using the Red Light Therapy for my lungs in 2021 not knowing if it was going to help or not. I did change Pulmonologist January 2023 at which time my FVC level was at 1.99. I just had a PFT in…

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I do 3 miles on the treadmill 3 times a week. I have worked hard at increasing my speed to 2.6 although some days I have to decrease the speed for a short time until I have a good oximeter reading. I would like to walk outside but our air quality is not the best on most days which seems to effect me. I also do some weights. My work on…

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I was diagnosed with IPF in 2020 and like you only use oxygen upon exertion. In 2023 I required a TKR. My Pulmonologist wrote a recommendation for dealing with my illness. Here is what she wrote to the TKR doctor: She is at increased risk for pulmonary complications related to her IPF- biggest concern
would be an acute IPF…

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This is what I use and it works well for me. Here is the Amazon…

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Adding to my original post…I have attended Pulmonary Rehab and I’m glad that I did. I do have to say that their periodic educational sessions were geared more toward COPD patients than pulmonary fibrosis patients, but I still learned some things like how to deal with stress, diet, etc. I was able to strength my lung capacity and learned…

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I have attended Pulmonary Rehab and I’m glad that I did. I do have to say that their periodic educational sessions were geared more toward COPD patients than pulmonary fibrosis patients, but I still learned some things like how to deal with stress, diet, etc.

Hi, my name is Marcia. I was diagnosed with IPF in 2020. I noticed in your post that you deal with post nasal drip and that you pretty much have it under control. I also feel like I’m dealing with post nasal drip. Can you tell me what you are doing to help with that? Thank you!

I have been on Ofev since 2020. I have had severe diarrhea while being on the Ofev 150. I was taking 6 Imodium to try to control it and lost about 30 pounds. 2023 was the best I felt since 2020 (no flare-ups). January 2024 they encouraged me to try the Ofev 100 (to try to control the diarrhea) but my cough got worse. My Pulmonologist told…

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