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  OFEV

  Posted by Syed on April 26, 2024 at 9:24 am

  My shortness of breath started within 10 weeks of my heart attack in 2019. I was diagnosed with IPF on October 2022 (FVC 62%).

  I was on OFEV for 8 weeks but couldn’t continue due to (diarrhea, loss of appetite). In October 2023, my FVC drop to 57% (5% declined ).

  I started OFEV in November 2022 and diarrhea side effects is manageable with 1 leparomide (2 mg) in the morning.

  In April 2023, my FVC dropped to 50% which is 7% declined in 7 months.

  For me, it looks I was better off without OFEV though doctor said that every person is different and FVC declined is no linear.

  Does anyone can share their experiences regarding OFEV.

  Should I continue or stop OFEV as it still have loss of appetite side effect.

  Syed replied 1 week, 4 days ago 1 Member · 0 Replies
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