@shahnn
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Neha replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 3 weeks ago
Hi Millie, our non profit, Pulmonary Fibrosis NOW!, has an ongoing clinical study examining the effects of serrapeptase and nattokinase in people with IPF. A majority of the participants enrolled were already taking esbriet or ofev. All patients are under the care of their pulmonologist and so far we have not had any patient discontinue due to…[Read more]
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Neha replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 1 week ago
Hi Amit, If it’s allowed on this forum, I’d like to share a small research study that looked at the effects of a 3 month supplementation of serrapeptase and nattokinase on people with PF. The treatment resulted in improved symptoms and quality of life in a majority of participants. Here is a link to the publication:…[Read more]
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Neha posted an update 1 year, 5 months ago
Hi, Does anyone have experience with using Opsumit? Any feed back on dosage, side effects, cost etc would be greatly appreciated.
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Neha started the topic Mobility scooters in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago
Hi, does anyone have any suggestions for mobility scooters? I need help finding one that folds and is airline approved. Thank you very much.
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Neha replied to the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Hello Terry and Bill, Measuring progress regularly is an important way to gauge how you are doing, especially if you are trying a new medication/supplement or a breathing technique etc. Here is a link to 2 simple ways to measure your progress including charting your oxygen saturation levels at various times daily and by using the 6 minute walk…[Read more]
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Neha replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago
Hello Marianne, it seems like your doctor is advocating for what you need, which is great. Are you able to share a recording of the presentation, if you have it? It would be great information to learn about and share.
Thank you so much and have a great weekend.
Warm regards,
Neha
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Neha replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 11 months ago
Hello Marianne, here is a link to an article which talks about supplemental oxygen devices that you may find helpful before you have that conversation with your doctor: https://pulmonaryfibrosisnow.org/2019/04/05/supplemental-oxygen-tanks-vs-concentrators/ Using supplemental oxygen will definitely allow you to be more active and do more. Good luck…[Read more]
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Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago
We hope to have some answers to how serrapeptase and nattokinase work and their effects in patients with IPF by the end of this year.
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Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago
Thank you Charlene for your suggestion of putting the name of the enzyme in the search box. I am new to this forum, so that definitely helped me navigate.
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Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago
Hi Charlene, there is a lot of historic and anecdotal evidence on the benefits of protease enzymes on fibrosis and lung health. We did conduct a research study on serrapeptase and nattokinase and have seen very encouraging results (currently preparing the manuscript for publication) based on which we have initiated another larger, longer-term…[Read more]
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Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago
Hi, if anyone is open to trying natural supplements, my research has shown that Serrapeptase (an enzyme supplement) is beneficial in thinning mucous, making it easier to expel.
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Neha became a registered member 2 years ago