Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Neha

Home Members Neha
show less show more
Profile picture of Neha

@shahnn

Hi, Does anyone have experience with using Opsumit? Any feed back on dosage, side effects, cost etc would be greatly appreciated. View
  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Neha

    Neha replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 3 weeks ago

    Hi Millie, our non profit, Pulmonary Fibrosis NOW!, has an ongoing clinical study  examining the effects of serrapeptase and nattokinase in people with IPF. A majority of the participants enrolled were already taking esbriet or ofev. All patients are under the care of their pulmonologist and so far we have not had any patient discontinue due to…[Read more]

  • Profile picture of Neha

    Neha replied to the topic Serrapeptase and nattokinase and Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 1 week ago

    Hi Amit, If it’s allowed on this forum, I’d like to share a small research study that looked at the effects of a 3 month supplementation of serrapeptase and nattokinase on people with PF. The treatment resulted in improved symptoms and quality of life in a majority of participants. Here is a link to the publication:…[Read more]

  • Profile picture of Neha

    Neha posted an update 1 year, 5 months ago

    Hi, Does anyone have experience with using Opsumit? Any feed back on dosage, side effects, cost etc would be greatly appreciated.

  • Profile picture of Neha

    Neha started the topic Mobility scooters in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 6 months ago

    Hi, does anyone have any suggestions for mobility scooters? I need help finding one that folds and is airline approved. Thank you very much.

  • Profile picture of Neha

    Neha replied to the topic Shortness of breath and normal oxygen reading in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    Hello Terry and Bill,  Measuring progress regularly is an important way to gauge how you are doing, especially if you are trying a new medication/supplement or a breathing technique etc. Here is a link to 2 simple ways to measure your progress including charting your oxygen saturation levels at various times daily and by using the 6 minute walk…[Read more]

  • Profile picture of Neha

    Neha replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 10 months ago

    Hello Marianne, it seems like your doctor is advocating for what you need, which is great. Are you able to share a recording of the presentation, if you have it? It would be great information to learn about and share.

    Thank you so much and have a great weekend.

    Warm regards,

    Neha

  • Profile picture of Neha

    Neha replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 11 months ago

    Hello Marianne, here is a link to an article which talks about supplemental oxygen devices that you may find helpful before you have that conversation with your doctor: https://pulmonaryfibrosisnow.org/2019/04/05/supplemental-oxygen-tanks-vs-concentrators/ Using supplemental oxygen will definitely allow you to be more active and do more. Good luck…[Read more]

  • Profile picture of Neha

    Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago

    We hope to have some answers to how serrapeptase and nattokinase work and their effects in patients with IPF by the end of this year.

  • Profile picture of Neha

    Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago

    Thank you Charlene for your suggestion of putting the name of the enzyme in the search box. I am new to this forum, so that definitely helped me navigate.

  • Profile picture of Neha

    Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 12 months ago

    Hi Charlene, there is a lot of historic and anecdotal evidence on the benefits of protease enzymes on fibrosis and lung health. We did conduct a research study on serrapeptase and nattokinase and have seen very encouraging results (currently preparing the manuscript for publication) based on which we have initiated another larger, longer-term…[Read more]

  • Profile picture of Neha

    Neha replied to the topic Phlegm in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years ago

    Hi, if anyone is open to trying natural supplements, my research has shown that Serrapeptase (an enzyme supplement) is beneficial in thinning mucous, making it easier to expel.

  • Profile picture of Neha

    Neha became a registered member 2 years ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years ago

      Hello Neha, we are delighted to have you as a member of the pf forum. Welcome!

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Any Poetry Lovers Out There? by Christie Patient
  • Who Has Inspired You? by Charlene Marshall
  • Has anyone seen the film “More Than Ever” about an IPF patient? by Frank Bigley
  • Love Letters by Christie Patient
  • Larry Runyon by Samuel Kirton

Recent Replies

  • Everyday Challenges of Living with Pulmonary Fibrosis
  • Larry Runyon
  • Painful hand and leg cramps
  • Deep Tissue (or red light) Laser Therapy
  • Deep Tissue (or red light) Laser Therapy

Members

Newest | Active | Popular
  • Profile picture of Denise Stogdill
    Denise Stogdill
    Active 5 hours, 20 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 6 hours, 23 minutes ago
  • Profile picture of Sharon Rousmaniere
    Sharon Rousmaniere
    Active 7 hours ago
  • Profile picture of Patti
    Patti
    Active 7 hours, 8 minutes ago
  • Profile picture of Natalie Mondor
    Natalie Mondor
    Active 7 hours, 44 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen