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Biography
Name
Marjolein
Nickname
marjolein
Year of Birth
1964
Gender
Female
Location
Belgium
Relationship
Family
Short Bio
I follow up everything I can find on ILD-lungfibrosis. My husband has the disease caused by his rheumatoid arthritis. He is in an OFEV program since march 2022.
We are located in Belgium but spend the last 20 years (until Corona) part time in Arizona.
Type of Diagnosis
PF of known aetiology
Treatment / Medical Facility
UZ Leuven
Current medication regimen
OFEV
Lung transplantation status
ineligible
Supplemental Oxygen
no
Are you currently taking an anti-fibrotic medication?
yes
How did you find us?
Other
How long have you or the person that you are caring for had PF?
4 years diagnosed (known, probably longer)
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