Thanks Charlene for your response. I will call my Pulmonary doctor and see if that is an option he will endorse. That would give me peace of mind! Thanks again

Thanks for your response! I suggested this to my pulmonary doctor who I follow up with after lung transplant. He is not familiar with this test and feels I don’t need this. However, he is willing to order it at my request and expense. I’m still debating if I should research it further??? Thanks

Just update on Minimally Invasive Laminectomy. Had this procedure done on January 15, 2026 by Neurosurgeon from Philadelphia Temple Health. Laminectomy surgery was a success and doing well with no back pain now. So thankful for 3 surgeries ( 2 hip replacements and Minimally Invasive Laminectomy) since single lung transplant in 2022. God is…

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Thanks so much for your input about flying after your husband’s single lung transplant. It’s encouraging to hear he had no issues with oxygen in flight! I really appreciate you taking your time to share this with me and am hopeful this will be my experience with flying. Thanks again!

Just trying to get some feedback concerning flying after successful single lung transplant in 2022. Was supplemental oxygen needed while in flight in pressurized cabins with 5,000 – 8,000 altitude. Have not used any oxygen since transplant and lung transplant doctor advised I should have no need for supplemental oxygen in flight. I’m just…

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Hi Prabir: I am in a similar situation as you with a successful single lung transplant in 2022 and now 74 years old. I see from your article that you enjoy traveling. We are planning our first trip to Alaska in May 2026. The flight will be approximately 8 hours long. Have you been on an airplane since your transplant and had any issues with…

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My thinking also John! Will update after my trip. Thanks

Thanks Sam for your response and information. According to my lung transplant doctor, he feels I should have no need for POC according to my spirometry tests. Therefore, I will take his advice and pray that all goes well with our Alaska flight. This will be my first flight since having single lung transplant in 2022 and don’t know anyone else…

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I am planning to fly to Alaska in May and will be on approx 10 hour total flight. I don’t have a POC now since having a successful single lung transplant in 2022. What is a good rental company to rent a Inogen 4 POC for approximately 2 weeks? My pulmonary doctor will provide RX and know this expense for rental will be out of pocket for short…

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Thanks for your input on bilateral hip replacement and shoulder replacement following bilateral lung transplant. Good to know all went well for you also! I just had my left hip replacement in January 2025 and all went well with the healing process due to careful monitoring of anti rejection meds. Now I am in need of laminectomy and fusion for…

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Update on hip replacement after lung transplant. I had my right hip replacement surgery on April 29, 2024. My lung transplant doctor advised to stop taking the anti rejection medication Sirolimus 2 weeks prior to surgery and 6 weeks after surgery so the hip replacement would heal properly. I continued to take Tacro and the other 4 anti… Read more

Has anyone had a hip replacement and if so, did the anti rejection meds cause problems with healing? I’m two years post single lung transplant. Due to my age and arthritis, I am in need of hip replacement. My lung is doing great, however, the pain of bone on bone in my hip prevents me from being physically active. I have seen an orthopedic… Read more

Hi Kris: I didn’t have a cough prior to lung transplant so am unable to respond to your question about cough. My symptoms were extreme sob, fatigue and unable to walk any distance without oxygen.  I was on ofev for 3 months prior to transplant. The transplant surgeon told my wife following the surgery that my lung was stiff and the disease… Read more

Hi Kris: I was diagnosed with IPF in August 2021. I’m 70 years old and was fortunate to have a left single lung transplant on March 1 2022. I was hospitalized for 10 days and left the hospital with no oxygen supplement needed and was fortunate to have no complications. My right lung still has IPF and my doctor explained that it will eventually… Read more

Devastating – Unpredictable – Misunderstood – Terminal

 

Hi Kris: usually a heart catheterization of both left and right sides is a pre requirement for a lung transplant. Alot of times if a stent is required, that will be done during the catherization. I’m thinking once the stent is done, you could proceed with the transplant testing process. Just my opinion.

My total hospital stay including the day of surgery was 10 days. I was then discharged to Gift of Life House in Philadelphia for 2 weeks to be close to hospital if I experienced any issues. Home health nurse visited me there twice a week and PT and OT was ordered, but I didn’t need them as I was getting around quite well on my own. Today I am… Read more

I was diagnosed with Idiopathic Pulmonary Fibrosis disease in August 2021. I had been dealing with shortness of breath and it was progressively getting worse. My original pulmonologist had a wait and see approach. I got a second opinion and immediately I was advised to get on the National Lung transplant list. I started with the testing in… Read more

Thanks Charlene for the welcome to forum. It’s interesting to read about people’s experiences with PF and learn we are not alone in this disease.  Many good ideas to think and enact on. Stay safe and well. Dave

<p style=”text-align: left;”>Hi Steve thanks for the heads up on Omeprazole. I’m already taking Lansoprazole DR capsules 30 mg for GERD.  I think it’s similar to the Omeprazole you mentioned. I may inquire with the doctor about changing. Thanks for your help and stay safe. Dave</p>

Thanks Steve, my secondary diagnosis was Pulmonary Hypertension so it appears I already have it. It was discovered when I had a heart catheterization in July.  The heart catheterization showed no blockage and that is why I followed up with Pulmonary Fibrosis/hypertension doctor. I had been sob since 2018, and CT scan of mild Fibrosis in lungs.… Read more

Hi Steve thanks for the heads up on the NAC supplement. Currently I am taking 600 mg 2 hours after breakfast and 600 mg 2 hours after dinner. I will taper it to 600 mg a day after 2 weeks. What does PAH mean? Thanks for the rest of the tips to ask doctor. I have an interview with Philadelphia Temple University lung transplant center in November.… Read more

 

Hi Steve: thanks for taking the time to respond to my inquiry about NAC. I have now started taking it 2 times a day. Hopefully this will help me also. I have been reading the PF forum since being diagnosed with Pulmonary Fibrosis. Is there any tips on questions I should ask when I meet with PF doctor next month? I’m thinking asking for a… Read more

hi Charlene: I’m new on here and was recently diagnosed with pulmonary fibrosis with secondary diagnosis of pulmonary hypertension. I’m inquiring if anyone has tried NAC supplement. (N-Acetyl L-Cysteine) to slow the progression of PF? Since diagnosis, I have changed my diet, lost 10 pounds and am waiting for appointment to meet with… Read more